We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Conveying Physical Activity Recommendations to Youth with Inherited Arrhythmia Syndromes: Development of a Knowledge Translation Tool.
- Authors
Moncion, K.; Gow, R. M.; Longmuir, P. E.
- Abstract
Background: Healthcare professionals, families and others caring for youth with inherited arrhythmia syndromes lack resources for conveying physical activity recommendations. Activity recommendations for many youths with arrhythmias are often based on heart rate, rather than dynamic and static effort or type of sport. The purpose of this study was to develop a simple, easy to understand, written information form to convey physical activity recommendations for patients with inherited arrhythmia syndromes. Methods: Published physical activity recommendations for patients with arrhythmias were summarized. A draft information form was created to specify the heart rate restriction for the youth, activities suitable to the heart rate restriction, and tips for minimizing heart rate during physical activity. An 8-item survey (1-10 scale) evaluated the content and format of the draft form. Scores from 8 to 10 were considered "acceptable", 5 to 7 were "fair", and 0 to 5 were "poor". Results: 16 participants completed the survey [8 healthcare professionals (5 cardiologists, 2 nurses, 1 ECG technician), 4 youth with inherited arrhythmia syndromes and their mothers]. Total mean survey score for all participants was 8.8 ± 0.2. Highest ratings were "conveys a positive message" (mean = 9.3 ± 0.1) and "increased knowledge and confidence in activity recommendations (mean = 9.2 ±0.1). Visual appeal had the lowest rating (mean = 8.1 ± 0.2). Recommended changes were adding pictures/colours to enhance visual appeal. A revised form was created in response to the survey results. Discussion: Previous research indicated that parents find it unsettling to receive vague physical activity recommendations from health care professionals, and that many patients with arrhythmias and their families experience physical activity-related fear and anxiety. This study developed a simple, easy to understand written information form for conveying physical activity information about youth with arrhythmias. Healthcare professionals, patients and parents felt it conveyed a positive message and increased their physical activity confidence and knowledge. The form can be individually tailored for each patient's cardiac condition by the cardiologist. Future research is required to evaluate the information form effectiveness and impact on the physical activity participation of youth with inherited arrhythmia syndromes.
- Subjects
PAMPHLETS; ARRHYTHMIA; HEART beat; MEDICAL protocols; PATIENT education; PROFESSIONS; QUESTIONNAIRES; SURVEYS; SYNDROMES; PHYSICAL activity; CHILDREN; GENETICS
- Publication
Pediatric Exercise Science, 2016, Vol 28, p38
- ISSN
0899-8493
- Publication type
Article