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- Title
Health‐related quality of life, clinical outcomes, and subjective experiences of parent donors of pediatric liver transplant recipients.
- Authors
Yuen, Wing Yan; Tan, Ashley; Karthik, Sivaramakrishnan Venkatesh; Quak, Seng Hock; Kow, Alfred Wei‐Chieh; Aw, Marion M.
- Abstract
Purpose: The understanding of the HRQOL issues for parent donors of children who underwent LDLT is lacking. We evaluated the HRQOL of donor and non‐donor parents, described their subjective experiences and identified factors associated with lower HRQOL post‐donation. Methods: This is a cross‐sectional study of parent donors whose children underwent LDLT, using SF‐36v2 Health Survey to measure HRQOL, and a self‐developed questionnaire to evaluate their subjective experiences. Results: Of 32 pairs of donor and non‐donor parents, 27 donor and 19 non‐donor parents responded. The data of respondents were analyzed. Both donor and non‐donor parents' SF‐36v2 norm‐based scores were average or above average as compared to the Singapore population. Donors who made lifestyle changes post‐donation (adopting a healthy balanced diet, regular physical activity, quitting smoking, and moderate alcohol intake) were associated with lower GH (P = 0.009) and PF (P = 0.002) scores. Donors who took more than 3 months for full recovery had lower RP (P = 0.022) and BP scores (P = 0.038). On multivariate analysis, recipient complication of Clavien grade 3 or 4 was associated with increased RP score by 8.71 points (95% CI: 1.74‐15.68), after adjusting for time taken for full recovery. Majority (88.8%) had self‐reported recovery time under 6 months and returned to work within 3 months (74.0%). Conclusions: Donors with factors potentially associated with lower HRQOL may need more support to ensure better HRQOL outcomes post‐donation.
- Subjects
SINGAPORE; QUALITY of life; PARENTS; LIVER transplantation
- Publication
Pediatric Transplantation, 2019, Vol 23, Issue 2, pN.PAG
- ISSN
1397-3142
- Publication type
Article
- DOI
10.1111/petr.13337