We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Nutrition parentérale prolongée à domicile: la transition de l'enfant à l'adulte.
- Authors
Goulet, Olivier; Poisson, Catherine; Talbotec, Cécile; Rocha, Amelia; Brion, Karina; Eicher, Isabelle; Martinez, Isabelle; Bégo, Clémence; Villain, Claude; Joly, Francisca; Lambe, Cécile
- Abstract
Introduction. Facing with an increasing demand for transition to adult care management and guidelines, our Home Parenteral Nutrition (HPN) team designed an Adolescent Therapeutic Educational Program (ATEP) specifically intended for adolescents on long-term HPN. The aim of this study was to report on the first sessions of this program. Methods. The ATEP is designed in 3 sessions of 5 consecutive days, during school holidays over the year. The ATEP includes group sessions on catheter handling, disconnecting and connecting the PN and catheter dressing, dealing with unforeseen events such as fever or catheter injury, but also sessions with psychologist, social worker, sports teacher, fashion specialist, meeting with adults who received HPN since childhood. Specific course for the accompanying parents were also provided. Six months after the last session, a 3-day trip to the attraction park "le Futuroscope", Poitiers, France, was organized without any parental presence. Results. Along the three training courses, a total of 16 adolescents were enrolled in the ATEP. They were aged between 13 and 17 years (median 14 years IQR: 14-16.25). All were on long term HPN starting during the neonatal period except for five who started PN at a median age of 10-year-old (IQR: 1-10). At the time of the ATEP, their median PNDI was 105% (IQR: 95.5-120.8) while receiving a median number of 6 infusions per week (IQR: 5-7). Thirteen out of 16 received Taurolidine lock procedure. At the end of the three sessions, 11 adolescents could be considered as fully autonomous, 4 as partially autonomous and one failed to gain any autonomy. Course evaluation by adolescents or parents was good to excellent. Conclusion. Through the holistic and multi-professional approach of this training and the group cohesion, the adolescents were not only able to handle catheter care and PN connections but were able to understand and accept better their illness and project themselves into their own future.
- Subjects
PARENTERAL feeding; ADULT care services; CATHETERS; DRUG delivery devices; SOCIAL workers
- Publication
Médecine Thérapeutique: Pédiatrie, 2022, Vol 24, Issue 3/4, p163
- ISSN
1286-5494
- Publication type
Article
- DOI
10.1684/mtp.2023.0763