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- Title
Living with Systemic Sclerosis: A Patient and Physician Perspective.
- Authors
Young, Arissa; Rudy, Brittany; Volkmann, Elizabeth R
- Abstract
The fears associated with being diagnosed with a disease unfamiliar to many, systemic sclerosis, is described by a patient living with systemic sclerosis. The patient, a coauthor, also describes the challenges of being a young person diagnosed with a chronic and, at times, debilitating disease. Despite initially being told that she had 6 months to live, she has embraced life and has become a fierce advocate for others living with systemic sclerosis. The physician perspective is provided by two rheumatologists who specialize in systemic sclerosis and work at a scleroderma center of excellence. This section details the current challenges in diagnosing systemic sclerosis early and the dangers of a delayed diagnosis. It also reviews the importance of multi-disciplinary specialty centers in the care of patients with systemic sclerosis as well as empowering patients through education.
- Subjects
PHYSICIANS' attitudes; SYSTEMIC scleroderma; PATIENTS' attitudes; DELAYED diagnosis; PATIENT education
- Publication
Rheumatology & Therapy, 2023, Vol 10, Issue 4, p785
- ISSN
2198-6576
- Publication type
Article
- DOI
10.1007/s40744-023-00555-z