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- Title
PERCEPÇÕES E VIVÊNCIAS DA EQUIPE DE ENFERMAGEM FRENTE AO PACIENTE PEDIÁTRICO EM CUIDADOS PALIATIVOS.
- Authors
Schneider, Ana Sofia; Flurin Ludwig, Maria Cristina; Neis, Miriam; Martegani Ferreira, Anali; Becker Issi, Helena
- Abstract
Introduction: the proposal of Palliative Care is implemented for patients in situations of vulnerability to a serious, limiting disease that can inevitably lead to terminality. Objective: to know the perceptions and experiences of nursing professionals regarding the care of children in palliative care in pediatric units. Methodology: exploratory descriptive qualitative study conducted in pediatric units of a large university hospital in southern Brazil. Data were obtained through semi-structured interviews with nine participants, nurses and nursing technicians. Thematic content analysis was performed. Results: from the thematic analysis, four themes emerged: Child in palliative care: nursing view; Family- centered care; Experiences, feelings and perceptions of the nursing team; and Nursing team coping: challenges for care. The establishment of the principles of pediatric palliative care is fundamental to support qualified care. Nursing professionals reveal the need to be included in multidisciplinary meetings held to decide on conduct towards the patient, and feel the need for psychological support. Final considerations: the understanding that the philosophy of Palliative Care needs to be extended to an integrated network of care and respect for end-of-life decisions was revealed.
- Subjects
BRAZIL; RESEARCH; NURSES' attitudes; SOCIAL support; CHILDREN'S hospitals; RESEARCH methodology; INTERVIEWING; PSYCHOLOGY of nurses; QUALITATIVE research; FAMILY-centered care; PEDIATRIC nursing; THEMATIC analysis; CONTENT analysis; PSYCHOLOGICAL adaptation; PALLIATIVE treatment; CHILDREN
- Publication
Ciencia, Cuidado e Saude, 2020, Vol 19, p1
- ISSN
1677-3861
- Publication type
Article
- DOI
10.4025/ciencuidsaude.v19i0.41789