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- Title
Quality predictors of parental satisfaction after birth of infants with life-limiting conditions.
- Authors
Wool, Charlotte; Kain, Victoria J.; Mendes, Joana; Carter, Brian S.
- Abstract
<bold>Aim: </bold>This study examines parental satisfaction with care received in the context of a life-limiting foetal diagnosis and subsequent birth.<bold>Methods: </bold>Survey methods were utilised to embed the Quality Indicators (QI) and Parental Satisfaction of Perinatal Palliative Care Instrument in a survey: 'The Voice of Parents'.<bold>Results: </bold>The web-based survey had a final sample of N = 405 parent responders. Overall, parents reported satisfaction with care (80.2%; n = 393). Parents satisfied with care reported higher agreement with quality indicator items for all subscales. In total, 17 items from the 41-item instrument revealed the ability to predict higher parental satisfaction when particular QI are reported.<bold>Conclusion: </bold>This study has led to credible insights into parental satisfaction with care given after the birth of an infant with a life-limiting condition. The findings contribute to development of a model with a good fit in ascertaining the importance of compassion, unhurried provider-patient communication and bereavement interventions.
- Subjects
CHILDBIRTH; PATIENT satisfaction; PSYCHOLOGY of parents; INFANTS; FETAL monitoring
- Publication
Acta Paediatrica, 2018, Vol 107, Issue 2, p276
- ISSN
0803-5253
- Publication type
journal article
- DOI
10.1111/apa.13980