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- Title
What Fatigue Means to Persons Living with Parkinson's Disease? A Qualitative Study.
- Authors
George, Derek D.; Baer, Nicholas K.; Berliner, Jean M.; Jones, Jacqueline; Kluger, Benzi M.
- Abstract
Background: Fatigue is one of the most prevalent non‐motor symptoms of Parkinson's disease (PD). Research is hampered by imprecise terminology and the lack of case definition criteria. Objectives: To elicit the experiences of persons living with PD‐related fatigue and provide ecological validation for case definition criteria. Methods: Qualitative interviews were conducted with 22 individuals and 4 focus groups, and analyzed using an inductive qualitative method. Results: Six core themes emerged: (i) difficulty initiating and completing important tasks; (ii) desire for others to understand their fatigue experience; (iii) heterogeneity of experiences and descriptions of fatigue; (iv) complex relationships with other non‐motor symptoms; (v) variable self‐management strategies; and (vi) general alignment with proposed case definition criteria. Conclusions: PD‐related fatigue impacts function, is subjectively distinguishable from other non‐motor symptoms, has heterogeneous descriptions, and may be mitigated by various self‐management strategies. Proposed case definition criteria appear ecologically valid and warrant further optimization and testing.
- Subjects
PARKINSON'S disease; CANCER fatigue; QUALITATIVE research; SYMPTOMS
- Publication
Movement Disorders Clinical Practice, 2021, Vol 8, Issue 6, p919
- ISSN
2330-1619
- Publication type
Article
- DOI
10.1002/mdc3.13270