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- Title
Validity and Reliability of the Dying Care Process and Outcome Scales Before and After Death From the Bereaved Family Members' Perspective.
- Authors
Kanno, Yusuke; Sato, Kazuki; Shimizu, Megumi; Funamizu, Yuko; Andoh, Hideaki; Kishino, Megumi; Senaga, Tomomi; Takahashi, Tetsu; Miyashita, Mitsunori
- Abstract
Objective: There are no instruments evaluating the processes and outcomes of dying care right before and after death. Therefore, we developed and examined the validity and reliability of 2 scales for evaluating dying care processes and outcomes before and after death. Methods: A cross-sectional, anonymous questionnaire was administered to bereaved family members of patients with cancer who had died in 5 facilities. We evaluated the Dying Care Process Scale for Bereaved Family Members (DPS-B) and the Dying Care Outcome Scale for Bereaved Family Members (DOS-B) with 345 bereaved family members. Results: A factor analysis revealed that DPS-B and DOS-B each consisted of 4 subscales. For the DPS-B, they were "symptom management," "respect for the patient's dignity before and after death," "explanation to the family," and "family care." For the DOS-B, they were "peaceful dying process for the patient," "being respected as a person before and after death," "good relationship between the patient and family," and "peaceful dying process for the family." Both DPS-B and DOS-B had sufficient convergent and discriminative validity, sufficient internal consistency (DPS-B: α = 0.91 and subscales' αs = 0.78-0.91; DOS-B: α = 0.91 and subscales' αs = 0.78-0.94), and sufficient test–retest reliability (DPS-B: intraclass correlation coefficient [ICC] of total score = 0.79 and subscales = 0.55-0.79; DOS-B: ICC of total score = 0.88 and subscales = 0.70-0.88). Significance of Results: Both DPS-B and DOS-B are valid and reliable scales for evaluating the dying care processes and outcomes before and after death from the bereaved family members' perspectives.
- Subjects
JAPAN; HOSPITALS; BEREAVEMENT; CANCER patients; STATISTICAL correlation; DEATH; DISCRIMINANT analysis; EXPERIMENTAL design; FACTOR analysis; INTERVIEWING; RESEARCH methodology; HEALTH outcome assessment; QUESTIONNAIRES; REGRESSION analysis; RESEARCH evaluation; RESEARCH funding; SCALE analysis (Psychology); T-test (Statistics); TERMINAL care; ATTITUDES toward death; STATISTICAL reliability; CROSS-sectional method; DATA analysis software; FAMILY attitudes; DESCRIPTIVE statistics; INTRACLASS correlation
- Publication
American Journal of Hospice & Palliative Medicine, 2019, Vol 36, Issue 2, p130
- ISSN
1049-9091
- Publication type
Article
- DOI
10.1177/1049909118785178