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- Title
Chronic Disease and Pediatric Palliative Care: Nurses' Knowledge and Practice In Light of Human Care.
- Authors
da Silva Buck, Eliane Cristina; Neves de Oliveira, Evelyne de Lourdes; Costa Dias, Thainá Caroline; de Oliveira Coutinho Silva, Maria de Fátima; Figueiredo de Sá França, Jael Rúbia
- Abstract
Objective: The study's main goal has been to analyze knowledge and practices of care nurses about palliative care for children with chronic disease, in the light of the Theory of Human Caring. Method: It is a qualitative study developed with twelve nurses from two refence hospitals in pediatrics. Data were collected through semistructured interviews and analyzed from Content Analysis and Theory of Human Caring. Results: From the analysis of the empirical material, the following categories emerged: Knowledge of assistant nurses on palliative care; Situations eligible for the promotion of pediatric palliative care and Palliative care for children with chronic disease in nurses' care practice. Conclusion: There are weaknesses in the knowledge of participants that made it difficult to define palliative care, influencing the adoption of such care in caring practice. Medicalization was described as the main palliative action performed by the participants. However, measures of comfort, communication, and spiritual care were also approached as means to relieve the suffering of children with chronic diseases.
- Subjects
NURSING; NURSING models; CHRONIC diseases; PALLIATIVE care nurses; RESEARCH methodology; INTERVIEWING; NURSING theory; QUALITATIVE research; HUMANITY; CONTENT analysis; THEMATIC analysis; PALLIATIVE treatment; SPIRITUAL care (Medical care)
- Publication
Revista de Pesquisa: Cuidado é Fundamental, 2020, Vol 12, Issue 1, p682
- ISSN
1809-6107
- Publication type
Article
- DOI
10.9789/2175-5361.rpcfo.v12.9489