We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Patients' Views on Routine Collection of Patient-Reported Outcomes in Rheumatology Outpatient Care: A Multicenter Focus Group Study.
- Authors
Primdahl, Jette; Jensen, Dorte V.; Meincke, Rikke H.; Jensen, Kim V.; Ziegler, Connie; Nielsen, Stig W.; Dalsgaard, Lillian; Kildemand, Malene; Hetland, Merete L.; Esbensen, Bente A.
- Abstract
<bold>Objective: </bold>To explore the patients' views of the collection and use of patient-reported outcomes as part of routine care in patients with inflammatory arthritis.<bold>Methods: </bold>We conducted a qualitative focus group study based on interviews in each of the 5 geographical regions of Denmark. The analysis was based on content analysis. Four patient research partners were involved in the study.<bold>Results: </bold>In total, 32 adult patients (21 female) with rheumatoid arthritis (n = 21), psoriatic arthritis (n = 6), and axial spondyloarthritis (n = 5) participated. The mean age was 60 years (range 32-80 years). Five themes were derived from the analysis: 1) a need for information about why the data are collected, reflecting patients' uncertainty as to whether the collection of patient-reported outcomes primarily served to monitor their own disease, to save money, or to gather data for research purposes; 2) inclusion of patient-reported outcomes in the consultation, encompassing patients' expectations of active use of the patient-reported outcomes data during talks with rheumatologists or nurses; 3) reflections on how to respond to the patient-reported outcome measures (PROMs) to obtain high quality data, referring to patients' concerns about how to respond "correctly" and about issues that could affect their responses; 4) addressing patient-reported outcomes to the individual's challenges, reflecting the need for a more individualized approach; and 5) possibilities for improvement in the use of patient-reported outcomes, referring to patients' ideas for the future use of patient-reported outcomes.<bold>Conclusion: </bold>Information and dialogue regarding the purpose of patient-reported outcomes collection, how to respond to PROMs correctly, and inclusion of the patient-reported outcomes data in the consultation are of importance to patients with inflammatory arthritis who routinely complete patient-reported outcomes.
- Subjects
RHEUMATOLOGY; INFLAMMATION; OUTPATIENT medical care; RHEUMATOID arthritis; ARTHRITIS; PSORIATIC arthritis; RESEARCH; FOCUS groups; ATTITUDE (Psychology); RESEARCH methodology; EVALUATION research; MEDICAL cooperation; SPONDYLOARTHROPATHIES; QUALITATIVE research; COMPARATIVE studies; COMMUNICATION
- Publication
Arthritis Care & Research, 2020, Vol 72, Issue 9, p1331
- ISSN
2151-464X
- Publication type
journal article
- DOI
10.1002/acr.24019