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- Title
Privacidade relacional no ambulatório de oncogenética do hospital de clínicas de Porto Alegre.
- Authors
de Morais, Leonardo Stoll; Ashton-Prolla, Patrícia; Roberto Goldim, José; Santana Fernandes, Márcia
- Abstract
The article deals with the right to relational privacy in the context of Oncogenetics multidisciplinary service. In particular, the study aims to problematize the empirical change of individual privacy, to the relational notion, mainly, in the face of the challenges imposed by human genetic counseling. The central question of the study is to answer if the privacy aims to guarantee an exclusive frontier that separates the individual from the others; or whether it, on the contrary, protects the ongoing relationship of trust, permeated by shared decisions between the individual and others. For this, an institutional case study was carried out at the Ambulatory of Oncogenetics of the Hospital de Clínicas de Porto Alegre, in order to evaluate if, in this environment, privacy is consolidated through narratives that enhance the notion of individual possessing a secret; or whether it is defined on the basis of dialectical processes that translate the relational idea of the person receiving a shareable information. From the results obtained, it is concluded that, in genetic counseling, the right to privacy is protected through narrative processes established between the patient who shares the information and the professional who acts as receiver and interpreter. It is therefore a scenario in which there is a cooperative relationship in order to guarantee benefits to those involved, and it is the duty of the patient to inform the family members at risk and the duty of the health professional to keep the data and information confidential.
- Publication
Revista Brasileira de Políticas Públicas, 2018, Vol 8, Issue 3, p146
- ISSN
2179-8338
- Publication type
Article
- DOI
10.5102/rbpp.v8i3.5638