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An iterative and interdisciplinary categorisation process towards FAIRer digital resources for sensitive life-sciences data.
Published in:
Scientific Reports, 2022, v. 12, n. 1, p. 1, doi. 10.1038/s41598-022-25278-z
By:
- David, Romain;
- Ohmann, Christian;
- Boiten, Jan-Willem;
- Abadía, Mónica Cano;
- Bietrix, Florence;
- Canham, Steve;
- Chiusano, Maria Luisa;
- Dastrù, Walter;
- Laroquette, Arnaud;
- Longo, Dario;
- Mayrhofer, Michaela Th.;
- Panagiotopoulou, Maria;
- Richard, Audrey S.;
- Goryanin, Sergey;
- Verde, Pablo Emilio
Publication type:
Article
Correction: Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.
Published in:
2019
By:
- Goisauf, Melanie;
- Martin, Gillian;
- Bentzen, Heidi Beate;
- Budin-Ljøsne, Isabelle;
- Ursin, Lars;
- Durnová, Anna;
- Leitsalu, Liis;
- Smith, Katharine;
- Casati, Sara;
- Lavitrano, Marialuisa;
- Mascalzoni, Deborah;
- Boeckhout, Martin;
- Mayrhofer, Michaela Th
Publication type:
Correction Notice
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.
Published in:
PLoS ONE, 2019, v. 14, n. 9, p. 1, doi. 10.1371/journal.pone.0221496
By:
- Goisauf, Melanie;
- Martin, Gillian;
- Bentzen, Heidi Beate;
- Budin-Ljøsne, Isabelle;
- Ursin, Lars;
- Durnová, Anna;
- Leitsalu, Liis;
- Smith, Katharine;
- Casati, Sara;
- Lavitrano, Marialuisa;
- Mascalzoni, Deborah;
- Boeckhout, Martin;
- Mayrhofer, Michaela Th.
Publication type:
Article
The CORBEL matrix on informed consent in clinical studies: a multidisciplinary approach of Research Infrastructures Building Enduring Life-science Services.
Published in:
2021
By:
- Colombo, Cinzia;
- Mayrhofer, Michaela Th.;
- Kubiak, Christine;
- Battaglia, Serena;
- Matei, Mihaela;
- Lavitrano, Marialuisa;
- Casati, Sara;
- Chico, Victoria;
- Schluender, Irene;
- Carapina, Tamara;
- Mosconi, Paola
Publication type:
journal article
Sharing sensitive data in life sciences: an overview of centralized and federated approaches.
Published in:
Briefings in Bioinformatics, 2024, v. 25, n. 4, p. 1, doi. 10.1093/bib/bbae262
By:
- Rujano, Maria A;
- Boiten, Jan-Willem;
- Ohmann, Christian;
- Canham, Steve;
- Contrino, Sergio;
- David, Romain;
- Ewbank, Jonathan;
- Filippone, Claudia;
- Connellan, Claire;
- Custers, Ilse;
- Nuland, Rick van;
- Mayrhofer, Michaela Th;
- Holub, Petr;
- Álvarez, Eva García;
- Bacry, Emmanuel;
- Hughes, Nigel;
- Freeberg, Mallory A;
- Schaffhauser, Birgit;
- Wagener, Harald;
- Sánchez-Pla, Alex
Publication type:
Article
Biomarker Research and Development for Coronavirus Disease 2019 (COVID-19): European Medical Research Infrastructures Call for Global Coordination.
Published in:
Clinical Infectious Diseases, 2021, v. 72, n. 10, p. 1838, doi. 10.1093/cid/ciaa1250
By:
- Oldoni, Emanuela;
- Gool, Alain van;
- Bermejo, Laura García;
- Scherer, Andreas;
- Mayrhofer, Michaela Th;
- Florindi, Francesco;
- Demotes, Jacques;
- Kubiak, Christine;
- Fauvel, Anne-Charlotte;
- Bietrix, Florence;
- Ussi, Anton;
- Andreu, Antonio L
Publication type:
Article
Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity.
Published in:
Developing World Bioethics, 2024, v. 24, n. 3, p. 139, doi. 10.1111/dewb.12411
By:
- Tzortzatou‐Nanopoulou, Olga;
- Akyüz, Kaya;
- Goisauf, Melanie;
- Kozera, Łukasz;
- Mežinska, Signe;
- Th. Mayrhofer, Michaela;
- Slokenberga, Santa;
- Reichel, Jane;
- Croxton, Talishiea;
- Ziaka, Alexandra;
- Makri, Marina
Publication type:
Article
You Can't Have AI Both Ways: Balancing Health Data Privacy and Access Fairly.
Published in:
Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.929453
By:
- Bak, Marieke;
- Madai, Vince Istvan;
- Fritzsche, Marie-Christine;
- Mayrhofer, Michaela Th.;
- McLennan, Stuart
Publication type:
Article
Unlocking the potential of big data and AI in medicine: insights from biobanking.
Published in:
Frontiers in Medicine, 2024, p. 1, doi. 10.3389/fmed.2024.1336588
By:
- Akyüz, Kaya;
- Cano Abadía, Mónica;
- Goisauf, Melanie;
- Mayrhofer, Michaela Th.
Publication type:
Article
Ethical layering in AI-driven polygenic risk scores—New complexities, new challenges.
Published in:
Frontiers in Genetics, 2023, v. 14, p. 1, doi. 10.3389/fgene.2023.1098439
By:
- Fritzsche, Marie-Christine;
- Akyüz, Kaya;
- Abadía, Mónica Cano;
- McLennan, Stuart;
- Marttinen, Pekka;
- Th. Mayrhofer, Michaela;
- Buyx, Alena M.
Publication type:
Article
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Published in:
2019
By:
- Mascalzoni, Deborah;
- Bentzen, Heidi Beate;
- Budin-Ljøsne, Isabelle;
- Bygrave, Lee Andrew;
- Bell, Jessica;
- Dove, Edward S.;
- Fuchsberger, Christian;
- Hveem, Kristian;
- Mayrhofer, Michaela Th.;
- Meraviglia, Viviana;
- O'Brien, David R.;
- Pattaro, Cristian;
- Pramstaller, Peter P.;
- Rakić, Vojin;
- Rossini, Alessandra;
- Shabani, Mahsa;
- Svantesson, Dan Jerker B.;
- Tomasi, Marta;
- Ursin, Lars;
- Wjst, Matthias
Publication type:
journal article
BBMRI-ERIC: the novel gateway to biobanks.
Published in:
Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, 2016, v. 59, n. 3, p. 379, doi. 10.1007/s00103-015-2301-8
By:
- Mayrhofer, Michaela Th.;
- Holub, Petr;
- Wutte, Andrea;
- Litton, Jan-Eric
Publication type:
Article
Risk mapping for better governance in biobanking: the case of biobank.cy.
Published in:
Frontiers in Genetics, 2024, p. 1, doi. 10.3389/fgene.2024.1397156
By:
- Akyüz, Kaya;
- Goisauf, Melanie;
- Martin, Gillian M.;
- Mayrhofer, Michaela Th.;
- Antoniou, Stella;
- Charalambidou, Georgia;
- Deltas, Constantinos;
- Malatras, Apostolos;
- Papagregoriou, Gregory;
- Stefanou, Charalambos;
- Voutounou, Mariel
Publication type:
Article
Life course of retrospective harmonization initiatives: key elements to consider.
Published in:
Journal of Developmental Origins of Health & Disease, 2023, v. 14, n. 2, p. 190, doi. 10.1017/S2040174422000460
By:
- Fortier, Isabel;
- Wey, Tina W.;
- Bergeron, Julie;
- Pinot de Moira, Angela;
- Nybo-Andersen, Anne-Marie;
- Bishop, Tom;
- Murtagh, Madeleine J.;
- Miočević, Milica;
- Swertz, Morris A.;
- van Enckevort, Esther;
- Marcon, Yannick;
- Mayrhofer, Michaela. Th.;
- Ornelas, Jos Pedro;
- Sebert, Sylvain;
- Santos, Ana Cristina;
- Rocha, Artur;
- Wilson, Rebecca C.;
- Griffith, Lauren E.;
- Burton, Paul
Publication type:
Article

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