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- Title
Saturdays-in-Motion: Education and Empowerment through an Interdisciplinary Team Approach for Parkinson's Disease in Cali-Colombia.
- Authors
Muñoz, Beatriz E.; Quintana-Peña, Valentina; Gonzalez, Maria C.; Valderrama, Jaime A.; Castaño-Pino, Yor Jaggy; Rincón, Domiciano; Navarro, Andrés; Orozco, Jorge L.
- Abstract
Introduction. Parkinson's disease (PD) is one of the most prevalent age-related neurodegenerative disorders. The progression of PD produces an important disease burden in patients due to functional impairment, which also has repercussions on caregivers. In addition, it has become a challenge for health systems, especially in developing countries, which have limited resources. Multidisciplinary teams with a community approach have proved effective in high-income countries; however, there is no reported literature in low- and middle-income countries about this kind of initiative. Objective. This paper aims to document the experience of patients, caregivers, and experts in a community approach as an innovative model in a middle-income country. Methods. A quantitative descriptive research was conducted. The selection criteria were having a PD diagnosis, attending with a caregiver to Saturdays in Motion (SIM), or being a clinical expert invited to SIM. PD patients and their caregivers answered three surveys on their points of view with respect to SIM: SIM and their quality of life (QoL) and PDQ-39 and Zarit, whereas clinical experts completed two questions related to the SIM program. Descriptive statistics were used to summarize the results of the surveys and clinical tests. Results. Forty-eight, twenty-four, and twenty-one subjects answered surveys one, two, and three, respectively. In total, four clinical experts were interviewed. 87.9% of the patients consider that SIM activities improved their QoL. The most affected areas in PDQ-39 were those related to the social area. Around 66.6% of the caregivers reported a mild burden on Zarit and think that SIM enhances the PD patient's QoL. Clinical experts highlighted the sense of community and empathy. Conclusion. Our preliminary experience shows a multidisciplinary model with a community approach which redefines the traditional relationship between patients, caregivers, and clinical experts. This aim of this initiative is that education and empowerment patients and caregivers reach a better perception of QoL.
- Subjects
COLOMBIA; PARKINSON'S disease diagnosis; CAREGIVERS; DIFFUSION of innovations; EMPATHY; HEALTH care teams; INCOME; INTERVIEWING; RESEARCH methodology; PARKINSON'S disease; PATIENT education; QUALITY of life; QUESTIONNAIRES; SELF-efficacy; SURVEYS; QUANTITATIVE research; BURDEN of care; HUMAN services programs; CAREGIVER attitudes; PATIENTS' attitudes; DESCRIPTIVE statistics
- Publication
Parkinson's Disease (20420080), 2020, p1
- ISSN
2090-8083
- Publication type
Article
- DOI
10.1155/2020/2497386