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- Title
Investigating coping and stigma in people living with HIV through narrative medicine in the Italian multicentre non-interventional study DIAMANTE.
- Authors
Antinori, A.; Vergori, A.; Ripamonti, D.; Valenti, D.; Esposito, V.; Carleo, M. A.; Rusconi, S.; Cascio, A.; Manzillo, E.; Andreoni, M.; Orofino, G.; Cappuccio, A.; Reale, L.; Marini, M. G.; Mancusi, D.; Termini, R.; Uglietti, A.; Portaro, M.
- Abstract
Antiretroviral therapy (ART) significantly reduced Human Immunodeficiency Virus (HIV) morbidity and mortality; nevertheless, stigma still characterises the living with this condition. This study explored patients' coping experience by integrating narrative medicine (NM) in a non-interventional clinical trial. From June 2018 to September 2020 the study involved 18 centres across Italy; enrolled patients were both D/C/F/TAF naïve and previously ART-treated. Narratives were collected at enrolment (V1) and last visit (V4) and then independently analysed by three NM specialist researchers through content analysis. One-hundred and fourteen patients completed both V1 and V4 narratives. Supportive relationships with clinicians and undetectable viral load facilitated coping. Conversely, lack of disclosure of HIV-positive status, HIV metaphors, and unwillingness to narrate the life before the diagnosis indicated internalised stigma. This is the first non-interventional study to include narratives as patient reported outcomes (PROs). Improving HIV awareness and reducing the sense of guilt experienced by patients helps to overcome stigma and foster coping.
- Subjects
ITALY; HIV-positive persons; NARRATIVE medicine; HIV; PATIENTS' attitudes; PATIENT reported outcome measures; SOCIAL stigma
- Publication
Scientific Reports, 2023, Vol 13, Issue 1, p1
- ISSN
2045-2322
- Publication type
Article
- DOI
10.1038/s41598-023-44768-2