OpenURL Connection Search

Select item for more details and to access through your institution.

Building a culture of engagement at a research centre for childhood disability.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00319-5
By:
- Pozniak, Kinga;
- Buchanan, Francine;
- Cross, Andrea;
- Crowson, Jennifer;
- Galuppi, Barb;
- Grahovac, Danijela;
- Gorter, Jan Willem;
- Hlyva, Oksana;
- Ketelaar, Marjolijn;
- Kraus de Camargo, Olaf;
- Krpan Mesic, Manda;
- Martens, Rachel;
- McCauley, Dayle;
- Nguyen, Linda;
- Palisano, Robert J.;
- Phoenix, Michelle;
- Putterman, Connie;
- Rosenbaum, Peter;
- Sprung, Jennifer;
- Strohm, Sonya
Publication type:
Article
Evaluation of the partners in research course: a patient and researcher co-created course to build capacity in patient-oriented research.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00316-8
By:
- Courvoisier, Melissa;
- Baddeliyanage, Richelle;
- Wilhelm, Linda;
- Bayliss, Lorraine;
- Straus, Sharon E.;
- Fahim, Christine
Publication type:
Article
The Bridge Building Model: connecting evidence-based practice, evidence-based research, public involvement and needs led research.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00320-y
By:
- Ormstad, Heidi;
- Jamtvedt, Gro;
- Svege, Ida;
- Crowe, Sally
Publication type:
Article
Research as an essentiality beyond one's own competence: an interview study on frail older people's view of research.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00333-7
By:
- Haak, Maria;
- Ivanoff, Synneve;
- Barenfeld, Emmelie;
- Berge, Isak;
- Lood, Qarin
Publication type:
Article
Reporting of patient and public involvement and engagement (PPIE) in clinical trials published in nursing science journals: a descriptive study.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00331-9
By:
- Gray, Richard;
- Brasier, Catherine;
- Zirnsak, Tessa-May;
- Ng, Ashley H.
Publication type:
Article
Co-designing genomics research with a large group of donor-conceived siblings.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00325-7
By:
- Nunn, Jack S.;
- Crawshaw, Marilyn;
- Lacaze, Paul
Publication type:
Article
Involving and engaging pregnant women in maternity-related research: reflections on an innovative approach.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00332-8
By:
- Goodwin, Laura;
- Skrybant, Magdalena;
- Kenyon, Sara
Publication type:
Article
The mutual benefits of patient and public involvement in research: an example from a feasibility study (MoTaStim-Foot).
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00330-w
By:
- Aries, Alison M.;
- Bailey, Paul;
- Hunter, Susan M.
Publication type:
Article
Development and evaluation of a virtual patient-centered outcomes research training program for the cystic fibrosis community.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00328-4
By:
- Godfrey, Emily M.;
- Thayer, Erin K.;
- Mentch, Laura;
- Kazmerski, Traci M.;
- Brown, Georgia;
- Pam, Molly;
- Al Achkar, Morhaf
Publication type:
Article
Using nominal group technique to advance power assisted exercise equipment for people with stroke.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00311-z
By:
- Young, Rachel;
- Sage, Karen;
- Broom, David;
- Broomfield, Katherine;
- Church, Gavin;
- Smith, Christine
Publication type:
Article
Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00329-3
By:
- Small, Nicola;
- Ong, Bie Nio;
- Lewis, Annmarie;
- Allen, Dawn;
- Bagshaw, Nigel;
- Nahar, Papreen;
- Sanders, Caroline;
- the DEPEND team;
- Hodgson, Damian;
- Dehghan, Azad;
- Sharp, Charlotte;
- Dixon, Will;
- Lewis, Shôn;
- Kontopantelis, Evan;
- Daker-White, Gavin;
- Bower, Peter;
- Davies, Linda;
- Kayesh, Humayun;
- Spencer, Rebecca;
- McAvoy, Aneela
Publication type:
Article
Making community voices heard in a research–health service alliance, the evolving role of the Community Advisory Group: a case study from the members' perspective.
Published in:
2021
By:
- Wale, Janet L.;
- Di Pietro, Louisa;
- Renton, Heather;
- Sahhar, Margaret;
- Walker, Christine;
- Williams, Pamela;
- Meehan, Karen;
- Lynch, Elly;
- Martyn, Melissa;
- Bell, Jane;
- Winship, Ingrid;
- Gaff, Clara L.
Publication type:
Editorial
Patient advocacy group involvement in health technology assessments: an observational study.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00327-5
By:
- Single, Ann;
- Cabrera, Ariana;
- Fifer, Simon;
- Tsai, Jane;
- Paik, Jin-Young;
- Hope, Philip
Publication type:
Article
"PPI? That sounds like Payment Protection Insurance": Reflections and learning from a substance use and homelessness study Experts by Experience group.
Published in:
2021
By:
- Foster, Rebecca;
- Carver, Hannah;
- Wallace, Jason;
- Dunedin, Alex;
- Burridge, Stan;
- Foley, Philip;
- Pauly, Bernie;
- Parkes, Tessa
Publication type:
Letter
ReIMAGINE: a prostate cancer research consortium with added value through its patient and public involvement and engagement.
Published in:
2021
By:
- Green, S.;
- Tuck, S.;
- Long, J.;
- Green, T.;
- Green, A.;
- Ellis, P.;
- Haire, A.;
- Moss, C.;
- Cahill, F.;
- McCartan, N.;
- Brown, L.;
- Santaolalla, A.;
- Marsden, T.;
- Justo, M. Rodriquez;
- Hadley, J.;
- Punwani, S.;
- Attard, G.;
- Ahmed, H.;
- Moore, C. M.;
- Emberton, M.
Publication type:
Letter
What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive?
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00321-x
By:
- Malm, Camilla;
- Andersson, Stefan;
- Kylén, Maya;
- Iwarsson, Susanne;
- Hanson, Elizabeth;
- Schmidt, Steven M.
Publication type:
Article
What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive?
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00321-x
By:
- Malm, Camilla;
- Andersson, Stefan;
- Kylén, Maya;
- Iwarsson, Susanne;
- Hanson, Elizabeth;
- Schmidt, Steven M.
Publication type:
Article
Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team.
Published in:
2021
By:
- Boechler, Lindsey;
- Renwick, Steven;
- Alabi, Abdullateef;
- de la Torre, Harold;
- Kumar, Susheel;
- Singh, Harmanpreet;
- Xavier, Roshan;
- Hector, Dalise;
- McTaggart, Lauren;
- Shrubsole, Jennifer
Publication type:
Letter
The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00253-6
By:
- Hamakawa, Nao;
- Kogetsu, Atsushi;
- Isono, Moeko;
- Yamasaki, Chisato;
- Manabe, Shirou;
- Takeda, Toshihiro;
- Iwamoto, Kazumasa;
- Kubota, Tomoya;
- Barrett, Joe;
- Gray, Nathanael;
- Turner, Alison;
- Teare, Harriet;
- Imamura, Yukie;
- Yamamoto, Beverley Anne;
- Kaye, Jane;
- Hide, Michihiro;
- Takahashi, Masanori P.;
- Matsumura, Yasushi;
- Javaid, Muhammad Kassim;
- Kato, Kazuto
Publication type:
Article
Who should I involve in my research and why? Patients, carers or the public?
Published in:
2021
By:
- Staley, Kristina;
- Elliott, Jim;
- Stewart, Derek;
- Wilson, Roger
Publication type:
Editorial
Involving frail older patients in identifying outcome measures for transitional care—a feasibility study.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00288-9
By:
- Hansen, Troels Kjærskov;
- Jensen, Annesofie Lunde;
- Damsgaard, Else Marie;
- Rubak, Tone Maria Mørck;
- Jensen, Mikkel Erik Juul;
- Gregersen, Merete
Publication type:
Article
More than a method: trusting relationships, productive tensions, and two-way learning as mechanisms of authentic co-production.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00262-5
By:
- Knowles, Sarah E.;
- Allen, Dawn;
- Donnelly, Ailsa;
- Flynn, Jackie;
- Gallacher, Kay;
- Lewis, Annmarie;
- McCorkle, Grace;
- Mistry, Manoj;
- Walkington, Pat;
- Drinkwater, Jess
Publication type:
Article
Involving stakeholders in research priority setting: a scoping review.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00318-6
By:
- Grill, Christiane
Publication type:
Article
Patient powered research: an approach to building capacity for a hardly reached patient population to engage in cancer research.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00317-7
By:
- Charlot, Marjory;
- Carolan, Kelsi;
- Gawuga, Cyrena;
- Freeman, Elmer;
- Sprague Martinez, Linda
Publication type:
Article
Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills.
Published in:
2021
By:
- Loignon, Christine;
- Dupéré, Sophie;
- Leblanc, Caroline;
- Truchon, Karoline;
- Bouchard, Amélie;
- Arsenault, Johanne;
- Pinheiro Carvalho, Julia;
- Boudreault-Fournier, Alexandrine;
- Marcotte, Sylvain Aimé
Publication type:
Letter
What has the COVID-19 pandemic taught us about conducting patient and public involvement remotely? Insights from a series of digital meeting observations.
Published in:
2021
By:
- Lampa, Elin;
- Sonnentheil, Björn;
- Tökés, Antónia;
- Warner, Georgina
Publication type:
Letter
A rapid realist review of patient engagement in patient-oriented research and health care system impacts: part one.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00299-6
By:
- Zibrowski, Elaine;
- Carr, Tracey;
- McDonald, Shelagh;
- Thiessen, Heather;
- van Dusen, Ray;
- Goodridge, Donna;
- Haver, Charlene;
- Marciniuk, Darcy;
- Stobart, Christine;
- Verrall, Tanya;
- Groot, Gary
Publication type:
Article
Evolving partnerships: engagement methods in an established health services research team.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00314-w
By:
- Chamberlain, Stephanie A.;
- Gruneir, Andrea;
- Keefe, Janice M.;
- Berendonk, Charlotte;
- Corbett, Kyle;
- Bishop, Roberta;
- Bond, Graham;
- Forbes, Faye;
- Kieloch, Barbara;
- Mann, Jim;
- Thelker, Christine;
- Estabrooks, Carole A.
Publication type:
Article
Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills.
Published in:
2021
By:
- Loignon, Christine;
- Dupéré, Sophie;
- Leblanc, Caroline;
- Truchon, Karoline;
- Bouchard, Amélie;
- Arsenault, Johanne;
- Pinheiro Carvalho, Julia;
- Boudreault-Fournier, Alexandrine;
- Marcotte, Sylvain Aimé
Publication type:
Letter
The voices of lived experience: reflections from citizen team members in a long-term care research program.
Published in:
2021
By:
- Mann, Jim;
- Bishop, Roberta;
- Bond, Graham;
- Forbes, Faye;
- Kieloch, Barbara;
- Thelker, Christine;
- Chamberlain, Stephanie A.
Publication type:
Letter
A feasibility evaluation of Discovery Group: determining the acceptability and potential outcomes of a patient-led research group in a secure mental health inpatient setting.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00310-0
By:
- Aboaja, Anne;
- Atewogboye, Oluwatosin;
- Arslan, Mudassar;
- Parry-Newton, Lucia;
- Wilson, Lindsey
Publication type:
Article
Are we asking the right questions? Working with the LGBTQ+ community to prioritise healthcare research themes.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00298-7
By:
- Crowe, Sally;
- Barker, Eleanor;
- Roberts, Meg;
- Lloyd, Lucy;
- de Barros, Clara M.;
- Rebelo-Harris, Ben;
- Meads, Catherine;
- Saunders, Catherine L.
Publication type:
Article
Patient and family engagement in the development of core outcome sets for two rare chronic diseases in children.
Published in:
2021
By:
- Vanderhout, Shelley M.;
- Smith, Maureen;
- Pallone, Nicole;
- Tingley, Kylie;
- Pugliese, Michael;
- Chakraborty, Pranesh;
- Stockler, Sylvia;
- Offringa, Martin;
- Butcher, Nancy;
- Nicholls, Stuart G.;
- Potter, Beth K.
Publication type:
Letter
Male prisoners' experiences of taking part in research about suicide and violence: a mixed methods study.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00303-z
By:
- Hemming, Laura;
- Pratt, Daniel;
- Haddock, Gillian;
- Bhatti, Peer;
- Shaw, Jennifer
Publication type:
Article
"Could you give us an idea on what we are all doing here?" the Patient Voice in Cancer Research (PVCR) starting the journey of involvement in Ireland.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00301-1
By:
- Shé, Éidín Ní;
- Gordan, Aoife;
- Hughes, Barbara;
- Hope, Tom;
- McNally, Teresa;
- Whelan, Ramon;
- Staunton, Mary;
- Grayson, Margaret;
- Hazell, Liane;
- Wilson, Iseult;
- Stephens, Richard;
- Quinn, Elaine;
- McCann, Amanda
Publication type:
Article
The participatory development of a national core set of person-centred diabetes outcome constructs for use in routine diabetes care across healthcare sectors.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00309-7
By:
- Skovlund, Soren Eik;
- Troelsen, Lise H.;
- Klim, Lotte;
- Jakobsen, Poul Erik;
- Ejskjaer, Niels
Publication type:
Article
Toward more mindful reporting of patient and public involvement in healthcare.
Published in:
2021
By:
- Scholz, Brett;
- Bevan, Alan
Publication type:
Letter
Development of an online suicide prevention program involving people with lived experience: ideas and challenges.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00307-9
By:
- Dreier, Mareike;
- Baumgardt, Johanna;
- Bock, Thomas;
- Härter, Martin;
- Liebherz, Sarah
Publication type:
Article
Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00306-w
By:
- Goedhart, N. S.;
- Pittens, C. A. C. M.;
- Tončinić, S.;
- Zuiderent-Jerak, T.;
- Dedding, C.;
- Broerse, J. E. W.
Publication type:
Article
The use of digital storytelling of patients' stories as an approach to translating knowledge: a scoping review.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00305-x
By:
- Park, Elly;
- Forhan, Mary;
- Jones, C. Allyson
Publication type:
Article
Co-creation of practical "how-to guides" for patient engagement in key phases of medicines development—from theory to implementation.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00294-x
By:
- Feldman, David;
- Kruger, Paola;
- Delbecque, Laure;
- Duenas, Ashley;
- Bernard-Poenaru, Oana;
- Wollenschneider, Séverine;
- Hicks, Nick;
- Reed, Janine Ann;
- Sargeant, Ify;
- Pakarinen, Chi;
- Hamoir, Anne-Marie;
- on behalf of Patient Focused Medicines Development Working Groups 1;
- Deane, Katherine;
- Fox, Grace;
- Oleksandr, Gorbenko;
- Hartke, Jim;
- Larsen, Vivian;
- Missbach, Benjamin;
- Nolan, Claire;
- Ratcliffe, Natasha
Publication type:
Article
Using a 3 stage process to create a consumer research contact list in a paediatric health setting: the PARTICIPATE project.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00300-2
By:
- Gill, Fenella J.;
- Pienaar, Catherine;
- Jones, Tanya
Publication type:
Article
Co-creation and prototyping of an intervention focusing on health literacy in management of malaria at community-level in Ghana.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00302-0
By:
- Boateng, Millicent Addai;
- Agyei-Baffour, Eter;
- Angel, Sanne;
- Asare, Ofeibea;
- Prempeh, Benjamin;
- Enemark, Ulrika
Publication type:
Article
Engagement with a diverse Stakeholder Advisory Council for research in dementia care.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00297-8
By:
- Masoud, Sara S.;
- Glassner, Ashlie A.;
- Patel, Neela;
- Mendoza, Mayra;
- James, Deborah;
- Rivette, Sheran;
- White, Carole L.
Publication type:
Article
Conceptualising and constructing 'diversity' through experiences of public and patient involvement in health research.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00296-9
By:
- Reynolds, Joanna;
- Ogden, Margaret;
- Beresford, Ruth
Publication type:
Article
Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00295-w
By:
- Jones, Julia;
- Cowe, Marion;
- Marks, Sue;
- McAllister, Tony;
- Mendoza, Alex;
- Ponniah, Carole;
- Wythe, Helena;
- Mathie, Elspeth
Publication type:
Article
Empowering Maasai women behind the camera: Photovoice as a tool for trachoma control.
Published in:
2021
By:
- Mtuy, Tara B.;
- Mepukori, Jeremiah;
- Lankoi, Joseph;
- Lees, Shelley
Publication type:
Letter
Community engagement and involvement in Ghana: conversations with community stakeholders to inform surgical research.
Published in:
Research Involvement & Engagement, 2021, v. 7, n. 1, p. 1, doi. 10.1186/s40900-021-00270-5
By:
- Kroese, Karolin;
- Ofori, Bernard Appiah;
- Abdulai, Darling Ramatu;
- Monahan, Mark;
- Prah, Angela;
- Tabiri, Stephen
Publication type:
Article
Collaboration with people with lived experience of prison: reflections on researching cancer care in custodial settings.
Published in:
2021
By:
- Visser, Renske;
- Barber, Alyce-Ellen;
- X, Anthony;
- Wheatcroft, Sue;
- Mullen, Philip;
- Armes, Jo
Publication type:
Letter
Forming a Parent And Clinician Team (PACT) in a cohort of healthy children.
Published in:
2021
By:
- Vanderhout, Shelley M.;
- Birken, Catherine S.;
- Zaccaria Cho, Maria;
- Maguire, Jonathon L.
Publication type:
Letter

Found: 92