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- Title
Empirically Derived Patterns of Pain, Stooling, and Incontinence and Their Relations to Health-Related Quality of Life Among Youth With Chronic Constipation.
- Authors
Klages, Kimberly L.; Berlin, Kristoffer S.; Silverman, Alan H.; Mugie, Suzanne; Di Lorenzo, Carlo; Nurko, Samuel; Ponnambalam, Ananthasekar; Sanghavi, Rina; Sood, Manu R.
- Abstract
<bold>Objective: </bold>Chronic constipation is associated with pain, stress, and fecal incontinence, which negatively impact health-related quality of life (HRQoL); however, it is unclear if patterns of pain, stool frequency, and incontinence are differentially associated with HRQoL in youth with chronic constipation.<bold>Methods: </bold>410 caregivers completed a demographics and symptoms form, the Parental Opinions of Pediatric Constipation, Pediatric Symptom Checklist, and the Functional Disability Inventory.<bold>Results: </bold>Stooling patterns were derived using Latent Variable Mixture Modeling. A three-class model emerged: withholding/avoiding ( WA ), pain , and fecal incontinence ( FI ). The pain class reported the greatest amount of disease burden/distress, greatest impairments in illness-related activity limitations, more psychosocial problems, and, along with the FI class, elevated levels of family conflict. The FI class reported the greatest amount of parental worry of social impact.<bold>Conclusions: </bold>Youth with chronic constipation who experience pain or fecal incontinence may be at a greater risk for specific HRQoL problems such as illness-related activity limitations, psychosocial issues, disease burden and worry, and family conflict.
- Subjects
CONSTIPATION in children; QUALITY of life measurement; PAIN in children; FECAL incontinence in children; FAMILY conflict; PAIN &; psychology; MENTAL health; QUALITY of life; PSYCHOLOGY of caregivers; CHRONIC diseases; COMPARATIVE studies; CONSTIPATION; RESEARCH methodology; FECAL incontinence; MEDICAL cooperation; PAIN; PSYCHOLOGY of parents; QUESTIONNAIRES; RESEARCH; EVALUATION research; DISEASE complications; PSYCHOLOGY
- Publication
Journal of Pediatric Psychology, 2017, Vol 42, Issue 3, p325
- ISSN
0146-8693
- Publication type
journal article
- DOI
10.1093/jpepsy/jsw068