Found: 36
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Transforming the nutrition care model for infants with cystic fibrosis: A qualitative study of clinicians' perspectives.
- Published in:
- Pediatric Pulmonology, 2023, v. 58, n. 5, p. 1380, doi. 10.1002/ppul.26330
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- Publication type:
- Article
The Cystic Fibrosis Learning Network: A mixed methods evaluation of program goals, attributes, and impact.
- Published in:
- Learning Health Systems, 2023, v. 7, n. 3, p. 1, doi. 10.1002/lrh2.10356
- By:
- Publication type:
- Article
Establishing a Cystic Fibrosis Learning Network: Interventions to promote collaboration and data‐driven improvement at scale.
- Published in:
- Learning Health Systems, 2023, v. 7, n. 3, p. 1, doi. 10.1002/lrh2.10354
- By:
- Publication type:
- Article
Family perceptions of the usability and value of chronic disease web-based patient portals.
- Published in:
- 2014
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- Publication type:
- Journal Article
Parents' information needs and influential factors when making decisions about TNF-α inhibitors.
- Published in:
- Pediatric Rheumatology, 2016, v. 14, p. 1, doi. 10.1186/s12969-016-0113-5
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- Publication type:
- Article
Developing capable quality improvement leaders.
- Published in:
- Postgraduate Medical Journal, 2013, v. 89, n. 1048, p. 78, doi. 10.1136/postgradmedj-2012-000890rep
- By:
- Publication type:
- Article
Identification of hospitalized tracheostomy and ventilator dependent patients in administrative data.
- Published in:
- Pediatric Pulmonology, 2018, v. 53, n. 7, p. 973, doi. 10.1002/ppul.24054
- By:
- Publication type:
- Article
Perceptions of value of routine care among patients with cystic fibrosis and their families.
- Published in:
- Pediatric Pulmonology, 2004, v. 37, n. 3, p. 210, doi. 10.1002/ppul.10437
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- Publication type:
- Article
Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis (Presented in part at the Society for Adolescent Medicine Annual Meeting, March 2000, and the North American Cystic Fibrosis Conference, November 2000.)
- Published in:
- Pediatric Pulmonology, 2004, v. 37, n. 2, p. 165, doi. 10.1002/ppul.10436
- By:
- Publication type:
- Article
Comparison of physical activity in adolescents with cystic fibrosis versus age-matched controls.
- Published in:
- Pediatric Pulmonology, 2000, v. 30, n. 2, p. 86, doi. 10.1002/1099-0496(200008)30:2<86::AID-PPUL2>3.0.CO;2-Z
- By:
- Publication type:
- Article
Development of a Caregiver-Reported Experience Measure for Pediatric Hospital-to-Home Transitions.
- Published in:
- 2018
- By:
- Publication type:
- journal article
Facilitators and Barriers to Implementing Standardized Outcome Measurement for Children With Cleft Lip and Palate.
- Published in:
- Cleft Palate Craniofacial Journal, 2021, v. 58, n. 1, p. 7, doi. 10.1177/1055665620940187
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- Publication type:
- Article
Marked Variation Exists Among Surgeons and Hospitals in the Use of Secondary Cleft Lip Surgery.
- Published in:
- Cleft Palate Craniofacial Journal, 2020, v. 57, n. 2, p. 198, doi. 10.1177/1055665619880056
- By:
- Publication type:
- Article
Five-Fold Variation Among Surgeons and Hospitals in the Use of Secondary Palate Surgery.
- Published in:
- Cleft Palate Craniofacial Journal, 2019, v. 56, n. 5, p. 586, doi. 10.1177/1055665618799906
- By:
- Publication type:
- Article
A Randomized Trial of User-Controlled Text Messaging to Improve Asthma Outcomes: A Pilot Study.
- Published in:
- Clinical Pediatrics, 2017, v. 56, n. 14, p. 1336, doi. 10.1177/0009922816684857
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- Publication type:
- Article
Pilot and Feasibility Test of Adolescent-Controlled Text Messaging Reminders.
- Published in:
- Clinical Pediatrics, 2012, v. 51, n. 2, p. 114, doi. 10.1177/0009922811412950
- By:
- Publication type:
- Article
Are Pediatric Practice Settings Adolescent Friendly? An Exploration of Attitudes and Preferences.
- Published in:
- Clinical Pediatrics, 2004, v. 43, n. 1, p. 55, doi. 10.1177/000992280404300107
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- Publication type:
- Article
Making decisions about chronic disease treatment: a comparison of parents and their adolescent children.
- Published in:
- Health Expectations, 2016, v. 19, n. 3, p. 716, doi. 10.1111/hex.12210
- By:
- Publication type:
- Article
Views of treatment decision making from adolescents with chronic illnesses and their parents: a pilot study.
- Published in:
- Health Expectations, 2008, v. 11, n. 4, p. 343, doi. 10.1111/j.1369-7625.2008.00508.x
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- Publication type:
- Article
Patient Preferences in Diagnostic Imaging: A Scoping Review.
- Published in:
- Patient, 2023, v. 16, n. 6, p. 579, doi. 10.1007/s40271-023-00646-7
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- Publication type:
- Article
Usability Testing Finds Problems for Novice Users of Pediatric Portals.
- Published in:
- Journal of the American Medical Informatics Association, 2009, v. 16, n. 5, p. 660, doi. 10.1197/jamia.M3154
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- Publication type:
- Article
Evolution of Pediatric Chronic Disease Treatment Decisions.
- Published in:
- Medical Decision Making, 2015, v. 35, n. 6, p. 703, doi. 10.1177/0272989X15581805
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- Publication type:
- Article
What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making.
- Published in:
- 2012
- By:
- Publication type:
- Journal Article
What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making.
- Published in:
- Medical Decision Making, 2012, v. 32, n. 2, p. 246, doi. 10.1177/0272989X11421528
- By:
- Publication type:
- Article
Call for Papers on Adolescent and Young Adult Health.
- Published in:
- JAMA Pediatrics, 2015, v. 169, n. 8, p. 714, doi. 10.1001/jamapediatrics.2015.1727
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- Publication type:
- Article
The In Vivo Adherence Intervention For at Risk Adolescents With Asthma: Report of a Randomized Pilot Trial.
- Published in:
- Journal of Pediatric Psychology, 2012, v. 37, n. 4, p. 390, doi. 10.1093/jpepsy/jsr107
- By:
- Publication type:
- Article
Prevention of Tobacco Use Among Medically At-risk Children and Adolescents: Clinical and Research Opportunities in the Interest of Public Health.
- Published in:
- Journal of Pediatric Psychology, 2008, v. 33, n. 2, p. 119, doi. 10.1093/jpepsy/jsm132
- By:
- Publication type:
- Article
Improving self-management in adolescents with sickle cell disease.
- Published in:
- 2020
- By:
- Publication type:
- journal article
Reply to iManage: A novel self-management app for sickle cell disease.
- Published in:
- 2017
- By:
- Publication type:
- Letter
Development and evaluation of iManage: A self-management app co-designed by adolescents with sickle cell disease.
- Published in:
- 2017
- By:
- Publication type:
- journal article
Gender differences in health-related quality of life of adolescents with cystic fibrosis.
- Published in:
- Health & Quality of Life Outcomes, 2006, v. 4, p. 5, doi. 10.1186/1477-7525-4-5
- By:
- Publication type:
- Article
High Levels of Decisional Conflict and Decision Regret When Making Decisions About Biologics.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Parents' information needs in tumor necrosis factor-α inhibitor treatment decisions.
- Published in:
- 2013
- By:
- Publication type:
- journal article
Earning trust and losing it: Adolescents' views on trusting physicians.
- Published in:
- Journal of Family Practice, 2005, v. 54, n. 8, p. 679
- By:
- Publication type:
- Article
Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic.
- Published in:
- Journal of Patient Experience, 2023, p. 1, doi. 10.1177/23743735231188840
- By:
- Publication type:
- Article
Quality improvement in a school health program. Results of a process evaluation.
- Published in:
- 2000
- By:
- Publication type:
- journal article