We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Future MS care: a consensus statement of the MS in the 21st Century Steering Group.
- Authors
Rieckmann, Peter; Boyko, Alexey; Centonze, Diego; Coles, Alasdair; Elovaara, Irina; Havrdová, Eva; Hommes, Otto; LeLorier, Jacques; Morrow, Sarah; Oreja-Guevara, Celia; Rijke, Nick; Schippling, Sven
- Abstract
The 'MS in the 21st Century' initiative was established with the purpose of (1) defining how multiple sclerosis (MS) treatment and standards of care should look in the 21st century; (2) developing a minimum standard of care across the world; and (3) motivating the broad MS community to align standards of care and challenge the current treatment paradigm. The aim was to develop a consensus statement to reach and influence the broader MS community. An expert steering group from Europe and Canada-consisting of neurologists, patient advocates, a pharmacoepidemiologist/pharmacoeconomist, and representatives from national MS centers-participated in a series of workshop-driven meetings between February 2011 and 2012. After three phases of discussions, the steering group identified that the overall vision for future care of MS should be full access to personalized treatment, with reimbursement, to achieve freedom from disease. They constructed seven overall principles that support this vision: personalized care, patient engagement, commitment to research, regulatory body education and reimbursement issues, new endpoints in clinical trials, more therapy options, and MS centers of excellence. This consensus statement outlines the key aspects of the seven principles that need to be addressed. The 'MS in the 21st Century Steering Group' hopes that this consensus statement acts as a call to action for healthcare providers and decision-makers to address simultaneously the overarching principles that will guide patient management in order to improve outcomes for people with MS.
- Subjects
MULTIPLE sclerosis treatment; MEDICAL care; EPIDEMIOLOGISTS; DECISION making; CLINICAL trials; HEALTH outcome assessment
- Publication
Journal of Neurology, 2013, Vol 260, Issue 2, p462
- ISSN
0340-5354
- Publication type
Article
- DOI
10.1007/s00415-012-6656-6