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- Title
Needs of Parents of Children Who Are Deaf/Hard of Hearing With Autism Spectrum Disorder.
- Authors
Wiley, Susan; Gustafson, Samantha; Rozniak, Justin
- Abstract
Little is known about children who are deaf or hard of hearing (D/HH) with a coexisting autism spectrum disorder (ASD). The objective of our study was to understand the needs of children who are D/HH with coexisting ASD. We posed questions for group discussion about diagnostic process, impact of dual diagnosis on communication, and helpful resources. Four parents of three children participated. Challenges in the diagnostic process included the challenges in the appropriateness of the evaluation tools and the limited expertise of the professionals performing the evaluations. Broad-based special educational settings were perceived as helpful. Families described a range of broad-based communication strategies (spoken, sign, and written language, augmentative communication approaches). Families prioritized a focus on behavior and day-to-day functioning over academic performance. Families recognized the lack of professionals who understand ASD and deafness but have found the internet and technology as a mechanism to connect to information and families with similar needs.
- Subjects
TREATMENT of hearing disorders; AUTISM in children; FOCUS groups; HEARING impaired children; HEARING disorders in children; INTERVIEWING; NEEDS assessment; PARENT-child relationships; PARENTING; PARENTS; PSYCHOLOGICAL tests; RESEARCH funding; SOCIAL skills; COMORBIDITY; HEALTH facility translating services; THEMATIC analysis; PARENT attitudes; AUTISM spectrum disorders
- Publication
Journal of Deaf Studies & Deaf Education, 2014, Vol 19, Issue 1, p40
- ISSN
1081-4159
- Publication type
Article
- DOI
10.1093/deafed/ent044