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- Title
An Extraordinary Voice Expressed Through Humor: A Tribute to Casey Quinlan.
- Authors
Woods, Susan S; Oldenburg, Jan; Leeuwen, Daniel van; Sarasohn-Kahn, Jane; Hudson, Matthew F
- Abstract
The Journal of Participatory Medicine introduces Extraordinary Lives , a new journal section celebrating the voices and work of steadfast advocates of participatory medicine that we have lost. This inaugural essay spotlights Casey Quinlan, a patient activist who effectively used her humor and incisive analysis of health care to encourage others to strive for meaningful change. A first-generation "professional patient," Casey served as a role model who inspired many to share their stories and achieve genuine partnerships in care delivery. A maker of "good trouble," her voice and stance were part of her power and influence in disrupting the status quo. We present her fight for personal access to health data, her aspiration for personally customized evidence, and her drive for all people to control their health and their health care. J Particip Med 2023;15:e54527 doi:10.2196/54527
- Subjects
POWER (Social sciences); PATIENT portals; WIT &; humor; HEMATOLOGISTS; PATIENT participation; ROLE models
- Publication
Journal of Participatory Medicine, 2023, Vol 15, Issue 1, pN.PAG
- ISSN
2152-7202
- Publication type
Article
- DOI
10.2196/54527