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Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members.
Published in:
Pediatric Pulmonology, 2020, v. 55, n. 8, p. 2017, doi. 10.1002/ppul.24806
By:
- Trandel, Elizabeth T.;
- Kavalieratos, Dio;
- Basile, Melissa;
- Hobler, Mara R.;
- Georgiopoulos, Anna M.;
- Chen, Elaine;
- Goggin, Jessica L.;
- Goss, Christopher H.;
- Hempstead, Sarah E.;
- Faro, Albert;
- Dellon, Elisabeth P.
Publication type:
Article
Qualitative Analysis of Perspectives on Lung Transplant among People with Cystic Fibrosis.
Published in:
Annals of the American Thoracic Society, 2024, v. 21, n. 7, p. 1044, doi. 10.1513/AnnalsATS.202307-625OC
By:
- Milinic, Tijana;
- Hobler, Mara R.;
- Bartlett, Lauren E.;
- Gill, Eliana;
- Burdis, Nora;
- Engelberg, Ruth A.;
- Curtis, J. Randall;
- Hartzler, Andrea L.;
- Aitken, Moira L.;
- Kapnadak, Siddhartha G.;
- Goss, Christopher H.;
- Smith, Patrick J.;
- Ramos, Kathleen J.
Publication type:
Article
Take on transplant: human-centered design of a patient education tool to facilitate informed discussions about lung transplant among people with cystic fibrosis.
Published in:
Journal of the American Medical Informatics Association, 2023, v. 30, n. 1, p. 26, doi. 10.1093/jamia/ocac176
By:
- Hartzler, Andrea L;
- Bartlett, Lauren E;
- Hobler, Mara R;
- Reid, Nick;
- Pryor, Joseph B;
- Kapnadak, Siddhartha G;
- Berry, Donna L;
- Lober, William B;
- Goss, Christopher H;
- Ramos, Kathleen J;
- Group, for the Take on Transplant Study
Publication type:
Article
Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis.
Published in:
Journal of Palliative Medicine, 2021, v. 24, n. 11, p. 1650, doi. 10.1089/jpm.2020.0725
By:
- Basile, Melissa;
- Jojan, Lincy;
- Hobler, Mara R.;
- Dellon, Elisabeth P.;
- Georgiopoulos, Anna M.;
- Goggin, Jessica L.;
- Chen, Elaine;
- Goss, Christopher H.;
- Hempstead, Sarah E.;
- Faro, Albert;
- Kavalieratos, Dio
Publication type:
Article
Palliative Care Needs of Individuals with Cystic Fibrosis: Perspectives of Multiple Stakeholders.
Published in:
Journal of Palliative Medicine, 2020, v. 23, n. 7, p. 957, doi. 10.1089/jpm.2019.0464
By:
- Dellon, Elisabeth P.;
- Basile, Melissa;
- Hobler, Mara R.;
- Georgiopoulos, Anna M.;
- Chen, Elaine;
- Goggin, Jessica;
- Goss, Christopher H.;
- Hempstead, Sarah E.;
- Faro, Albert;
- Kavalieratos, Dio
Publication type:
Article
Exploring Opportunities for Primary Outpatient Palliative Care for Adults with Cystic Fibrosis: A Mixed-Methods Study of Patients' Needs.
Published in:
Journal of Palliative Medicine, 2018, v. 21, n. 4, p. 513, doi. 10.1089/jpm.2017.0259
By:
- Hobler, Mara R.;
- Engelberg, Ruth A.;
- Curtis, J. Randall;
- Ramos, Kathleen J.;
- Zander, Miriam I.;
- Howard, Shacole S.;
- Goss, Christopher H.;
- Aitken, Moira L.
Publication type:
Article

Found: 6

Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members.

Qualitative Analysis of Perspectives on Lung Transplant among People with Cystic Fibrosis.

Take on transplant: human-centered design of a patient education tool to facilitate informed discussions about lung transplant among people with cystic fibrosis.

Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis.

Palliative Care Needs of Individuals with Cystic Fibrosis: Perspectives of Multiple Stakeholders.

Exploring Opportunities for Primary Outpatient Palliative Care for Adults with Cystic Fibrosis: A Mixed-Methods Study of Patients' Needs.