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- Title
Quality of life and emotional distress in patients and burden in caregivers: a comparison between assisted peritoneal dialysis and self-care peritoneal dialysis.
- Authors
Griva, K.; Goh, C.; Kang, W.; Yu, Z.; Chan, M.; Wu, S.; Krishnasamy, T.; Foo, M.; Goh, C S; Kang, W C A; Yu, Z L; Chan, M C; Wu, S Y
- Abstract
<bold>Purpose: </bold>Assisted peritoneal dialysis (PD) involving caregivers allows more patients to get started on home-based dialysis with good clinical outcomes, but evidence on patient-reported and caregiver-reported outcomes is lacking. This study aimed to compare assisted PD versus self-care PD on quality of life (QoL) and psychosocial outcomes for patients and caregivers. The effect of PD modality [automated PD (APD); continuous ambulatory PD (CAPD)] in relation to self-care or assisted care was also examined.<bold>Methods: </bold>A cross-sectional sample of 231 PD patients [142 self-care (57 APD/85 CAPD) and 89 assisted care PD (45 APD/44 CAPD)], 72 caregivers of assisted PD patients and 39 family members of self-care PD patients completed the Kidney Disease Quality of Life Short Form (KDQOL-SF), World Health Organisation Quality of Life Instrument-brief and the Hospital Anxiety and Depression Scale. Caregivers and family members completed the Lay Care-Giving for Adults Receiving Dialysis questionnaire and Zarit Burden Interview.<bold>Results: </bold>Case-mix-adjusted comparisons indicated comparable QoL in all dimensions with the exception of physical SF-12 (p = .001) and the KDQOL effects of kidney disease in favour of self-care PD. Levels of anxiety (9.72 ± 4.90; 8.25 ± 5.22) and depression (8.63 ± 3.80; 6.35 ± 4.76) were equivalent in assisted PD and self-care PD, respectively. Assisted PD caregivers reported more task-orientated duties (p = .007), yet levels of perceived burden were equal to those reported by family members of self-care PD.<bold>Conclusion: </bold>Our findings of mostly comparable patient and caregiver outcomes in assisted PD and self-care PD suggest that caregiver burden and QoL should not be a barrier to using assisted PD.
- Subjects
QUALITY of life; PATIENTS; PERITONEAL dialysis; MEDICAL care; COMPARATIVE studies; MENTAL health; ANXIETY; MENTAL depression; ADAPTABILITY (Personality); PSYCHOLOGY of caregivers; CONTINUOUS ambulatory peritoneal dialysis; RESEARCH methodology; MEDICAL cooperation; PSYCHOLOGICAL tests; QUESTIONNAIRES; RESEARCH; HEALTH self-care; PSYCHOLOGICAL stress; EVALUATION research; CROSS-sectional method; PSYCHOLOGICAL factors
- Publication
Quality of Life Research, 2016, Vol 25, Issue 2, p373
- ISSN
0962-9343
- Publication type
journal article
- DOI
10.1007/s11136-015-1074-8