We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Physical, Cognitive, and Psychosocial Predictors of Functional Disability and Health-Related Quality of Life in Adolescents with Neurofibromatosis-1.
- Authors
Garwood, Molly M.; Bernacki, Jessica M.; Fine, Kathi M.; Hainsworth, Keri R.; Davies, W. Hobart; Klein-Tasman, Bonita P.
- Abstract
Objective. To examine physical, cognitive, and social-emotional predictors of quality of life (HRQOL) and functional disability (FD) in adolescents diagnosed with Neurofibromatosis-1. Methods. Participants were twenty-seven adolescents with a diagnosis of NF-1 who were recruited through an NF-1 specialty clinic at a large Midwestern children's hospital. Measurements of the adolescents' cognitive functioning, pain, FD, HRQOL, and social and emotional functioning were obtained with corresponding parent measures. Results. Emotional functioning significantly predicted youth-reported and parent-reported HRQOL, whereas days of pain significantly predicted youth-reported FD. Conclusions. NF-1 is a complex disease. Measurements of the overall impact of the disease tap into different aspects of the effects of NF-1 on daily life. Global outcomes such as HRQOL appear to be influenced especially by emotional functioning, whereas outcomes such as FD appear to be influenced by the physical/organic aspects of NF-1.
- Subjects
NEUROFIBROMATOSIS 1; PSYCHOSOCIAL factors; PEOPLE with disabilities; ADOLESCENT psychiatry; QUALITY of life; HEALTH outcome assessment
- Publication
Pain Research & Treatment, 2012, p1
- ISSN
2090-1542
- Publication type
Article
- DOI
10.1155/2012/975364