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- Title
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes.
- Authors
Ali, Salma R.; Bryce, Jillian; Tan, Li En; Hiort, Olaf; Pereira, Alberto M.; van den Akker, Erica L. T.; Appelman-Dijkstra, Natasha M.; Bertherat, Jerome; Cools, Martine; Dekkers, Olaf M.; Kodra, Yllka; Persani, Luca; Smyth, Arelene; Smythe, Christopher; Taruscio, Domenica; Ahmed, S. Faisal
- Publication
International Journal of Environmental Research & Public Health, 2020, Vol 17, Issue 23, p8743
- ISSN
1661-7827
- Publication type
Article
- DOI
10.3390/ijerph17238743