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- Title
Patients' Illness Perception as a Tool to Improve Individual Disease Management in Primary Cutaneous Lymphomas.
- Authors
PORKERT, Stefanie; LEHNER-BAUMGARTNER, Eva; VALENCAK, Julia; KNOBLER, Robert; RIEDL, Elisabeth; JONAK, Constanze
- Abstract
The Revised Illness Perception Questionnaire (IPQ-R) has been shown to assess illness perception reproducibly in primary cutaneous T-cell lymphomas (CTCL). Illness perception reflects patients' individual concepts of understanding and interpretation of the disease, influencing illness behaviour and health-related quality of life (HRQOL). This study investigated the clinical relevance of the relationships between illness perception, illness behaviour, and HRQOL in CTCL and cutaneous B-cell lymphomas (CBCL). A total of 92 patients completed the IPQ-R, the Scale for the Assessment of Illness Behavior (SAIB), and a skin-specific HRQOL tool (Skindex-29). Data on illness behaviour were not evidently related to illness perception, whereas illness perception was significantly associated with HRQOL. Both, IPQ-R and HRQOL results correlated with disease entity, stage, and socio-demographics. Only IPQ-R results provided practical information on patients' needs to train personal coping strategies. IPQ-R assessment in CTCL and CBCL might be a useful instrument to improve individual disease management.
- Subjects
PSYCHOLOGY of the sick; T-cell lymphoma; PATIENT psychology; QUALITY of life; DISEASE management
- Publication
Acta Dermato-Venereologica, 2018, Vol 98, Issue 2, p240
- ISSN
0001-5555
- Publication type
Article
- DOI
10.2340/00015555-2819