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- Title
A Mother's Journey to Diagnose Her Daughter's Rare Disease.
- Authors
White, Wendy
- Abstract
The article focuses on a mother's journey on diagnosing the rare disease of her daughter. It states that patients with rare diseases feel alone and isolated and seek a connection with others like them, patients and caregivers expect biopharmaceutical companies to participate and increasing awareness around rare diseases is important. It mentions that rare disease patient Casey's mother seeks help of support groups when she comes to know about Casey's Nail-patella syndrome disease.
- Subjects
MOTHER-child relationship; RARE diseases; NAIL-patella syndrome; SUPPORT groups; BIOPHARMACEUTICS; DIAGNOSIS
- Publication
Journal of Participatory Medicine, 2013, Vol 5, p1
- ISSN
2152-7202
- Publication type
Article