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- Title
Rare diseases: New approaches to diagnosis and care.
- Authors
PALMER, ELIZABETH EMMA; MILLIS, NICOLE; FARRAR, MICHELLE; ZURYNSKI, YVONNE; BAYNAM, GARETH; JAFFE, ADAM
- Abstract
Two million people in Australia live with a rare disease and face common challenges of diagnostic delay, lack of clinical knowledge and treatment and fragmented care, as well as significant psychosocial impacts. Caring for patients with rare diseases and their families requires innovative collaborative approaches across institutional, geographical and system boundaries. New resources and toolkits that prioritise improved diagnosis, care and support are available to help GPs provide excellence in rare disease care for patients and their families.
- Subjects
AUSTRALIA; RARE diseases; DELAYED diagnosis; GEOGRAPHIC boundaries; AUSTRALIANS; PATIENTS' families
- Publication
Medicine Today, 2023, Vol 24, Issue 1/2, p69
- ISSN
1443-430X
- Publication type
Article