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- Title
Ethical considerations in choosing a model for population-based cystic fibrosis carrier screening.
- Authors
Modra LJ; Massie RJ; Delatycki MB; Modra, Lucy J; Massie, R John; Delatycki, Martin B
- Abstract
Cystic fibrosis (CF) carrier testing can be used to inform reproductive decision making, allowing carriers to avoid having a child with CF. A government-funded, population-based CF carrier screening program would allow greater equity of access to this test. The setting in which CF carrier screening is offered significantly affects the extent to which participants make well informed, voluntary decisions to accept or decline testing. Screening offered before pregnancy and in non-clinical environments better promotes participant autonomy than screening offered in the prenatal consultation.
- Publication
Medical Journal of Australia, 2010, Vol 193, Issue 3, p157
- ISSN
0025-729X
- Publication type
journal article
- DOI
10.5694/j.1326-5377.2010.tb03836.x