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"Melanoma: Questions and Answers." Development and evaluation of a psycho-educational resource for people with a history of melanoma.
Published in:
2016
By:
- Kasparian, Nadine;
- Mireskandari, Shab;
- Butow, Phyllis;
- Dieng, Mbathio;
- Cust, Anne;
- Meiser, Bettina;
- Barlow-Stewart, Kristine;
- Menzies, Scott;
- Mann, Graham;
- Kasparian, Nadine A;
- Butow, Phyllis N;
- Cust, Anne E;
- Mann, Graham J
Publication type:
journal article
What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta‐analysis.
Published in:
Psycho-Oncology, 2022, v. 31, n. 6, p. 879, doi. 10.1002/pon.5921
By:
- Luigjes‐Huizer, Yvonne L.;
- Tauber, Nina M.;
- Humphris, Gerry;
- Kasparian, Nadine A.;
- Lam, Wendy W. T.;
- Lebel, Sophie;
- Simard, Sébastien;
- Smith, Allan Ben;
- Zachariae, Robert;
- Afiyanti, Yati;
- Bell, Katy J. L.;
- Custers, José A. E.;
- de Wit, Niek J.;
- Fisher, Peter L.;
- Galica, Jacqueline;
- Garland, Sheila N.;
- Helsper, Charles W.;
- Jeppesen, Mette M.;
- Liu, Jianlin;
- Mititelu, Roxana
Publication type:
Article
Posttraumatic Stress and Prolonged Grief After the Sudden Cardiac Death of a Young Relative.
Published in:
2016
By:
- Ingles, Jodie;
- Spinks, Catherine;
- Yeates, Laura;
- McGeechan, Kevin;
- Kasparian, Nadine;
- Semsarian, Christopher
Publication type:
journal article
Sensitivity of Preference-Based Quality-of-Life Measures for Economic Evaluations in Early-Stage Melanoma.
Published in:
2018
By:
- Dieng, Mbathio;
- Kasparian, Nadine A.;
- Cust, Anne E.;
- Costa, Daniel S. J.;
- Tran, Anh;
- Butow, Phyllis N.;
- Menzies, Scott W.;
- Mann, Graham J.;
- Morton, Rachael L.
Publication type:
journal article
Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma.
Published in:
Applied Health Economics & Health Policy, 2019, v. 17, n. 5, p. 669, doi. 10.1007/s40258-019-00483-6
By:
- Dieng, Mbathio;
- Khanna, Nikita;
- Kasparian, Nadine A.;
- Costa, Daniel S. J.;
- Butow, Phyllis N.;
- Menzies, Scott W.;
- Mann, Graham J.;
- Cust, Anne E;
- Morton, Rachael L.
Publication type:
Article
When the Risks Are High: Psychological Adjustment Among Melanoma Survivors at High Risk of Developing New Primary Disease.
Published in:
2012
By:
- McLoone, Jordana;
- Watts, Kaaren;
- Menzies, Scott;
- Meiser, Bettina;
- Butow, Phyllis;
- Kasparian, Nadine
Publication type:
Journal Article
Children's experiences of congenital heart disease: a systematic review of qualitative studies.
Published in:
2018
By:
- Chong, Lauren S. H.;
- Fitzgerald, Dominic A.;
- Craig, Jonathan C.;
- Manera, Karine E.;
- Hanson, Camilla S.;
- Celermajer, David;
- Ayer, Julian;
- Kasparian, Nadine A.;
- Tong, Allison
Publication type:
journal article
Hypoplastic left heart syndrome in context.
Published in:
Journal of Paediatrics & Child Health, 2012, v. 48, n. 2, p. E7, doi. 10.1111/j.1440-1754.2011.02084.x
By:
- Winlaw, David S;
- Badawi, Nadia;
- Jacobe, Stephen;
- Kasparian, Nadine A;
- Cooper, Stephen G;
- Murphy, David N;
- Sherwood, Megan C;
- Roberts, Philip;
- Leclair, Karen;
- Scarfe, Gabbie;
- Sholler, Gary F
Publication type:
Article
Fetal and post-natal diagnosis of major congenital heart disease: Implications for medical and psychological care in the current era.
Published in:
Journal of Paediatrics & Child Health, 2011, v. 47, n. 10, p. 717, doi. 10.1111/j.1440-1754.2011.02039.x
By:
- Sholler, Gary F;
- Kasparian, Nadine A;
- Pye, Victoria E;
- Cole, Andrew D;
- Winlaw, David S
Publication type:
Article
Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative.
Published in:
Cardiology in the Young, 2023, v. 33, n. 2, p. 280, doi. 10.1017/S1047951122000579
By:
- Kasparian, Nadine A.;
- Sadhwani, Anjali;
- Sananes, Renee;
- Blumenfeld, Elizabeth;
- Butcher, Jennifer L.;
- Cassidy, Adam R.;
- Cox, Stephany M.;
- Kenowitz, Joslyn;
- Miller, Thomas A.;
- Sanz, Jacqueline H.;
- Wolfe, Kelly R.;
- Ilardi, Dawn
Publication type:
Article
Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative.
Published in:
Cardiology in the Young, 2021, v. 31, n. 6, p. 900, doi. 10.1017/S1047951121002134
By:
- Sood, Erica;
- Lisanti, Amy Jo;
- Woolf-King, Sarah E.;
- Wray, Jo;
- Kasparian, Nadine;
- Jackson, Emily;
- Gregory, Mary R.;
- Lopez, Keila N.;
- Marino, Bradley S.;
- Neely, Trent;
- Randall, Amy;
- Zyblewski, Sinai C.;
- Brosig, Cheryl L.
Publication type:
Article
Feeding difficulties in neonates following cardiac surgery: determinants of prolonged feeding-tube use.
Published in:
2017
By:
- Mckean, Elissa B.;
- Kasparian, Nadine A.;
- Batra, Shweta;
- Sholler, Gary F.;
- Winlaw, David S.;
- Dalby-Payne, Jacqueline
Publication type:
journal article
eHealth literacy and preferences for eHealth resources in parents of children with complex CHD.
Published in:
2017
By:
- Kasparian, Nadine A.;
- Lieu, Nathan;
- Winlaw, David S.;
- Cole, Andrew;
- Kirk, Edwin;
- Sholler, Gary F.
Publication type:
journal article
"Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being.
Published in:
2019
By:
- Wan, Hamish W. Y.;
- Carey, Kate A.;
- D'Silva, Arlene;
- Farrar, Michelle A.;
- Kasparian, Nadine A.
Publication type:
journal article
Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial.
Published in:
International Journal of Environmental Research & Public Health, 2023, v. 20, n. 1, p. 584, doi. 10.3390/ijerph20010584
By:
- Siegel, Robert;
- McGrady, Meghan E.;
- Dynan, Linda;
- Kharofa, Roohi;
- Stackpole, Kristin;
- Casson, Paula;
- Siegel, Francesca;
- Kasparian, Nadine A.
Publication type:
Article
Economic evaluations of psychosocial interventions in cancer: a systematic review.
Published in:
2016
By:
- Dieng, Mbathio;
- Cust, Anne E.;
- Kasparian, Nadine A.;
- Mann, Graham J.;
- Morton, Rachael L.
Publication type:
journal article
Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach.
Published in:
2016
By:
- Costa, Daniel S. J.;
- Dieng, Mbathio;
- Cust, Anne E.;
- Butow, Phyllis N.;
- Kasparian, Nadine A.
Publication type:
journal article
Improving subjective perception of personal cancer risk: systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer.
Published in:
Psycho-Oncology, 2014, v. 23, n. 6, p. 613, doi. 10.1002/pon.3476
By:
- Dieng, Mbathio;
- Watts, Caroline G.;
- Kasparian, Nadine A.;
- Morton, Rachael L.;
- Mann, Graham J.;
- Cust, Anne E.
Publication type:
Article
Psycho-educational interventions for melanoma survivors: a systematic review.
Published in:
Psycho-Oncology, 2013, v. 22, n. 7, p. 1444, doi. 10.1002/pon.3165
By:
- McLoone, Jordana;
- Menzies, Scott;
- Meiser, Bettina;
- Mann, Graham J.;
- Kasparian, Nadine A.
Publication type:
Article
Oral contraceptive use in women at increased risk of breast/ovarian cancer: knowledge and attitudes.
Published in:
Psycho-Oncology, 2013, v. 22, n. 1, p. 228, doi. 10.1002/pon.2049
By:
- Bui, Kim Tam;
- Wakefield, Claire E.;
- Kasparian, Nadine A.;
- Tyler, Janet;
- Abbott, Jason;
- Tucker, Kathy
Publication type:
Article
The nature and structure of psychological distress in people at high risk for melanoma: a factor analytic study.
Published in:
Psycho-Oncology, 2012, v. 21, n. 8, p. 845, doi. 10.1002/pon.1976
By:
- Kasparian, Nadine A.;
- Sansom‐Daly, Ursula;
- McDonald, Roderick P.;
- Meiser, Bettina;
- Butow, Phyllis N.;
- Mann, Graham J.
Publication type:
Article
Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: a theoretical review of the literature.
Published in:
Psycho-Oncology, 2010, v. 19, n. 1, p. 1, doi. 10.1002/pon.1582
By:
- Sherman, Kerry A.;
- Kasparian, Nadine A.;
- Mireskandari, Shab
Publication type:
Article
High- and average-risk individuals' beliefs about, and perceptions of, malignant melanoma: an Australian perspective.
Published in:
Psycho-Oncology, 2008, v. 17, n. 3, p. 270, doi. 10.1002/pon.1230
By:
- Kasparian, Nadine A.;
- Butow, Phyllis N.;
- Meiser, Bettina;
- Mann, Graham J.
Publication type:
Article
Anticipated uptake of genetic testing for familial melanoma in an Australian sample: an exploratory study.
Published in:
Psycho-Oncology, 2007, v. 16, n. 1, p. 69, doi. 10.1002/pon.1052
By:
- Kasparian, Nadine A.;
- Meiser, Bettina;
- Butow, Phyllis N.;
- Soames Job, R. F.;
- Mann, Graham J.
Publication type:
Article
Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences.
Published in:
Journal of Child Health Care, 2017, v. 21, n. 4, p. 424, doi. 10.1177/1367493517725833
By:
- Marokakis, Sarah;
- Kasparian, Nadine A.;
- Kennedy, Sean E.
Publication type:
Article
"The Whole Game is Changing and You've Got Hope": Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy.
Published in:
Patient, 2020, v. 13, n. 4, p. 389, doi. 10.1007/s40271-020-00415-w
By:
- Farrar, Michelle A.;
- Carey, Kate A.;
- Paguinto, Sarah-Grace;
- Kasparian, Nadine A.;
- De Abreu Lourenço, Richard
Publication type:
Article
Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease.
Published in:
European Journal of Human Genetics, 2015, v. 23, n. 1, p. 34, doi. 10.1038/ejhg.2014.44
By:
- Kasparian, Nadine A;
- Rutstein, Alison;
- Sansom-Daly, Ursula M;
- Mireskandari, Shab;
- Tyler, Janet;
- Duffy, Jessica;
- Tucker, Katherine M
Publication type:
Article
Better the Devil You Know? High-Risk Individuals' Anticipated Psychological Responses to Genetic Testing for Melanoma Susceptibility.
Published in:
Journal of Genetic Counseling, 2006, v. 15, n. 6, p. 433, doi. 10.1007/s10897-006-9038-3
By:
- Kasparian, Nadine;
- Meiser, Bettina;
- Butow, Phyllis;
- Job, R.;
- Mann, Graham
Publication type:
Article
Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study.
Published in:
Pediatric Cardiology, 2024, v. 45, n. 3, p. 529, doi. 10.1007/s00246-023-03376-7
By:
- Verrall, Charlotte E.;
- Tran, Derek L.;
- Kasparian, Nadine A.;
- Williams, Tracey;
- Oxenham, Vincent;
- Ayer, Julian;
- Celermajer, David S.;
- Cordina, Rachael L.
Publication type:
Article
The Melanoma care study: protocol of a randomised controlled trial of a psychoeducational intervention for melanoma survivors at high risk of developing new primary disease.
Published in:
BMC Psychology, 2015, v. 3, n. 1, p. 1, doi. 10.1186/s40359-015-0074-3
By:
- Dieng, Mbathio;
- Kasparian, Nadine A.;
- Morton, Rachael L.;
- Mann, Graham J.;
- Butow, Phyllis;
- Menzies, Scott;
- Costa, Daniel S. J.;
- Cust, Anne E.
Publication type:
Article
Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review.
Published in:
2020
By:
- Wan, Hamish W. Y.;
- Carey, Kate A.;
- D'Silva, Arlene;
- Vucic, Steve;
- Kiernan, Matthew C.;
- Kasparian, Nadine A.;
- Farrar, Michelle A.
Publication type:
journal article
Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment.
Published in:
Developmental Medicine & Child Neurology, 2022, v. 64, n. 6, p. 753, doi. 10.1111/dmcn.15135
By:
- Carey, Kate A.;
- Farrar, Michelle A.;
- Kasparian, Nadine A.;
- Street, Deborah J.;
- De Abreu Lourenco, Richard
Publication type:
Article
Women's Knowledge, Beliefs, and Information Needs in Relation to the Risks and Benefits Associated with Use of the Oral Contraceptive Pill.
Published in:
2011
By:
- Philipson, Sarah;
- Wakefield, Claire E.;
- Kasparian, Nadine A.
Publication type:
Journal Article
Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings.
Published in:
JAMA Network Open, 2024, v. 7, n. 7, p. e2422104, doi. 10.1001/jamanetworkopen.2024.22104
By:
- Akram, Farah;
- Webb, Annabel E.;
- Pidcock, Madeleine;
- Farrar, Michelle A.;
- Kasparian, Nadine A.
Publication type:
Article
"It's more than just a conversation about the heart": exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care.
Published in:
Frontiers in Pediatrics, 2024, p. 1, doi. 10.3389/fped.2024.1364190
By:
- Abell, Bridget;
- Rodwell, David;
- Eagleson, Karen J.;
- Parsonage, William;
- Auld, Ben;
- Bora, Samudragupta;
- Kasparian, Nadine A.;
- Justo, Robert;
- McPhail, Steven M.
Publication type:
Article
Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association.
Published in:
Journal of the American Heart Association, 2024, v. 13, n. 19, p. 1, doi. 10.1161/JAHA.124.036214
By:
- Peterson, Jennifer K.;
- Clarke, Shanelle;
- Gelb, Bruce D.;
- Kasparian, Nadine A.;
- Kazazian, Vanna;
- Pieciak, Karyn;
- Pike, Nancy A.;
- Setty, Shaun P.;
- Uveges, Melissa K.;
- Rudd, Nancy A.
Publication type:
Article
Quality of Life and Well-Being in Adults With Fontan Physiology: Findings From the Australian and New Zealand Fontan Registry Quality of Life Study.
Published in:
Journal of the American Heart Association, 2024, v. 13, n. 15, p. 1, doi. 10.1161/JAHA.123.033818
By:
- Marshall, Kate H.;
- d'Udekem, Yves;
- Winlaw, David S.;
- Zannino, Diana;
- Celermajer, David S.;
- Justo, Robert;
- Iyengar, Ajay;
- Cordina, Rachael;
- Sholler, Gary F.;
- Woolfenden, Susan R.;
- Kasparian, Nadine A.
Publication type:
Article
Prevalence and Prognostic Association of a Clinical Diagnosis of Depression in Adult Congenital Heart Disease: Results of the Boston Adult Congenital Heart Disease Biobank.
Published in:
2020
By:
- Carazo, Matthew R.;
- Kolodziej, Meghan S.;
- DeWitt, Elizabeth S.;
- Kasparian, Nadine A.;
- Newburger, Jane W.;
- Duarte, Valeria E.;
- Singh, Michael N.;
- Opotowsky, Alexander R.
Publication type:
journal article
Health-Related Quality of Life in Children, Adolescents, and Adults With a Fontan Circulation: A Meta-Analysis.
Published in:
2020
By:
- Marshall, Kate H.;
- D'Udekem, Yves;
- Sholler, Gary F.;
- Opotowsky, Alexander R.;
- Costa, Daniel S. J.;
- Sharpe, Louise;
- Celermajer, David S.;
- Winlaw, David S.;
- Newburger, Jane W.;
- Kasparian, Nadine A.
Publication type:
journal article
Parents' perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study.
Published in:
BJU International, 2017, v. 119, n. 3, p. 474, doi. 10.1111/bju.13668
By:
- Marokakis, Sarah;
- Kasparian, Nadine A.;
- Kennedy, Sean E.
Publication type:
Article
Identifying the 'Active Ingredients' of an Effective Psychological Intervention to Reduce Fear of Cancer Recurrence: A Process Evaluation.
Published in:
Frontiers in Psychology, 2021, v. 12, p. 1, doi. 10.3389/fpsyg.2021.661190
By:
- Kan, Janice M.;
- Dieng, Mbathio;
- Butow, Phyllis N.;
- Mireskandari, Shab;
- Tesson, Stephanie;
- Menzies, Scott W.;
- Costa, Daniel S. J.;
- Morton, Rachael L.;
- Mann, Graham J.;
- Cust, Anne E.;
- Kasparian, Nadine A.
Publication type:
Article
What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review.
Published in:
Developmental Psychobiology, 2019, v. 61, n. 5, p. 700, doi. 10.1002/dev.21819
By:
- Kan, Janice M.;
- Cowan, Caitlin S. M.;
- Ooi, Chee Y.;
- Kasparian, Nadine A.
Publication type:
Article
Engaging hearts and minds: An in-depth qualitative examination of health professionals' perceptions of, and experiences with, an integrated, hospital-based mental health service dedicated to childhood heart disease.
Published in:
International Journal of Integrated Care (IJIC), 2019, v. 19, n. S1, p. 1, doi. 10.5334/ijic.s3378
By:
- Kasparian, Nadine;
- Pidcock, Madeleine;
- McElduff, Michelle;
- Macintosh-Evans, Phoebe;
- Sholler, Gary
Publication type:
Article
Integrated psychological care in paediatric hospital settings: Determining implementation success.
Published in:
International Journal of Integrated Care (IJIC), 2019, v. 19, n. S1, p. 1, doi. 10.5334/ijic.s3181
By:
- Marshall, Kate;
- Newham, James;
- Lingam, Raghu;
- Kasparian, Nadine
Publication type:
Article
Mother–Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery.
Published in:
Journal of Pediatric Psychology, 2024, v. 49, n. 1, p. 13, doi. 10.1093/jpepsy/jsad069
By:
- Tesson, Stephanie;
- Swinsburg, Dianne;
- Nielson-Jones, Claudia;
- Costa, Daniel S J;
- Winlaw, David S;
- Badawi, Nadia;
- Sholler, Gary F;
- Butow, Phyllis N;
- Kasparian, Nadine A
Publication type:
Article
Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease.
Published in:
Journal of Pediatric Psychology, 2023, v. 48, n. 6, p. 537, doi. 10.1093/jpepsy/jsad015
By:
- Eagleson, Karen J;
- McCombs, Desiree;
- Gerlich, Tiffany M;
- Justo, Robert N;
- Kasparian, Nadine A;
- Bora, Samudragupta
Publication type:
Article
Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative.
Published in:
Journal of Pediatric Psychology, 2022, v. 47, n. 6, p. 707, doi. 10.1093/jpepsy/jsac003
By:
- Cox, Stephany M;
- Butcher, Jennifer L;
- Sadhwani, Anjali;
- Sananes, Renee;
- Sanz, Jacqueline H;
- Blumenfeld, Elizabeth;
- Cassidy, Adam R;
- Cowin, Jessica C;
- Ilardi, Dawn;
- Kasparian, Nadine A;
- Kenowitz, Joslyn;
- Kroll, Kristin;
- Miller, Thomas A;
- Wolfe, Kelly R;
- Collaborative, from the Telehealth Task Force of the Cardiac Neurodevelopmental Outcome;
- from the Telehealth Task Force of the Cardiac Neurodevelopmental Outcome Collaborative
Publication type:
Article
Maintaining Momentum in Infant Mental Health Research During COVID-19: Adapting Observational Assessments.
Published in:
2021
By:
- Tesson, Stephanie;
- Swinsburg, Dianne;
- Kasparian, Nadine A
Publication type:
journal article
"Congenital heart health": how psychological care can make a difference.
Published in:
2016
By:
- Kasparian, Nadine A.;
- Winlaw, David S.;
- Sholler, Gary F.
Publication type:
journal article
Communication and Information Needs of Women Diagnosed With Ovarian Cancer Regarding Treatment-Focused Genetic Testing.
Published in:
Oncology Nursing Forum, 2013, v. 40, n. 3, p. 275, doi. 10.1188/13.ONF.40-03AP
By:
- Gleeson, Margaret;
- Meiser, Bettina;
- Barlow-Stewart, Kristine;
- Trainer, Alison H.;
- Tucker, Kathy;
- Watts, Kaaren J.;
- Friedlander, Michael;
- Kasparian, Nadine
Publication type:
Article

Found: 59