We found a match
Your institution may have rights to this item. Sign in to continue.
- Title
Study protocol for the Functional Communication Checklist for people living with primary progressive aphasia.
- Authors
Gallée, Jeanne; Cartwright, Jade; Henry, Maya L.; Mooney, Aimee; Stark, Brielle C.; Volkmer, Anna; Nakano, Connie; Fredericksen, Rob J.; Domoto-Reilly, Kimiko; Crane, Paul K.
- Abstract
This study protocol describes the development of the first instrument of functional communication for people living with primary progressive aphasia (PPA), with future applications to other progressive conditions, with expert validation, item-level reliability analyses, input from partners in research, and outcomes. Progressive conditions like PPA require monitoring, and as such, re-assessment. Re-assessment poses the high risk of being burdensome, destructive, and of little use to the patient. As such, there is a significant need to establish a validated and reliable measure that (1) poses minimal patient burden and (2) captures communication ability in a strengths-based manner for both clinical and research purposes. A strengths-based approach to assessment is widely recognized as the optimal way to promote patient autonomy, minimize harm, and implement functional treatment protocols and strategies. To date, there are no strengths-based assessment tools that were developed for people living with PPA nor ways to efficiently document functional communication performance. This study protocol outlines our work to address this gap in clinical practice and research.
- Subjects
PATIENT autonomy; COMMUNICATIVE competence; RESEARCH protocols; MEDICAL protocols; MEDICAL research
- Publication
PLoS ONE, 2024, Vol 19, Issue 9, p1
- ISSN
1932-6203
- Publication type
Article
- DOI
10.1371/journal.pone.0301652