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- Title
Improving assessment in small fiber neuropathy.
- Authors
Brouwer, Brigitte A.; Bakkers, Mayienne; Hoeijmakers, Janneke G. J.; Faber, Catharina G.; Merkies, Ingemar S. J.
- Abstract
Interval measures at the impairment level addressing symptoms and at the activity/participation level addressing daily and social restrictions have not been developed for small fiber neuropathy ( SFN). We developed an SFN-specific Rasch-built overall disability scale ( SFN-RODS©), an activity/participation scale at the interval level. A preliminary SFN-RODS containing 146 activity/participation items was assessed twice (reliability studies) in 238 patients with SFN. The ordinal-based 13-item SFN-symptoms inventory questionnaire ( SFN-SIQ©) and pain-visual-analogue-scale were also assessed (validity studies). The pre- SFN-RODS and SFN-SIQ data were subjected to the Rasch analyses. The pre- SFN-RODS did not meet Rasch model expectations. Based on requirements, such as misfit statistics, differential item functioning, and local dependency, items were systematically removed and model fit improved. Finally, a 32-item SFN-RODS© scale was constructed that fulfilled all Rasch requirements, demonstrating acceptable reliability and validity scores. The 13-item SFN-SIQ© was successfully transformed to an interval Rasch-built measure fulfilling model's requirements. In conclusion, the 32-item SFN-RODS© is a disease-specific interval measure suitable for detecting activity limitations and participation restrictions in patients with SFN. The 13-item SFN-SIQ© was transformed through Rasch to an interval measure. The use of these scales is recommended in future clinical interventional trials involving patients with SFN.
- Subjects
STATISTICAL correlation; FUNCTIONAL assessment; EXPERIMENTAL design; RESEARCH methodology; NEUROPATHY; HEALTH outcome assessment; QUALITY of life; QUESTIONNAIRES; RESEARCH evaluation; STATISTICS; DATA analysis; STATISTICAL reliability; VISUAL analog scale; MULTITRAIT multimethod techniques; RESEARCH methodology evaluation; INTRACLASS correlation
- Publication
Journal of the Peripheral Nervous System, 2015, Vol 20, Issue 3, p333
- ISSN
1085-9489
- Publication type
Article
- DOI
10.1111/jns.12128