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- Title
Collection and determinants of patient reported outcome measures in haemodialysis patients in Scotland.
- Authors
Nimmo, A.; Bell, S.; Brunton, C.; Campbell, J.; Doyle, A.; MacKinnon, B.; Peel, R. K.; Robertson, S.; Shilliday, I.; Spalding, E.; Traynor, J. P.; Metcalfe, W.
- Abstract
Background/Introduction: Patient reported outcome measures (PROMs) can evaluate the quality of health in patients with established renal failure. There is limited experience of their use within national renal registries. Aim: To describe the Scottish Renal Registry's (SRR) experience of collecting PROMS in the haemodialysis population and correlate PROMS to demographic and clinical parameters. Design: Retrospective observational cross-sectional study. Methods: Haemodialysis patients in Scotland were invited to complete the KDQOL™-36 questionnaire on the day of the annual SRR census in 2015 and 2016. Questionnaires were linked to census demographic and clinical variables. Results: In 2016, 738 questionnaires were linked to census data (39% of prevalent haemodialysis population). Response rates differed with age (≥65 years 42%,<65 years 36%) [χ² P=0.006]; duration of renal replacement therapy (<1 year 46%,≥1<5 years 38%,≥5 years 33%) [χ² P=0.002] and social class (Scottish Index of Multiple Deprivation (SIMD) Class 1 32%, Class 2 41%, Class 3 40%, Class 4 48%, Class 5 40%) [χ² P<0.001]. There were significant differences in PROMs with age, SIMD quintile and primary renal diagnosis. Achieving a urea reduction ratio of>65% and dialysing through arteriovenous access were associated with significantly higher PROMs. PROMs were not affected by haemoglobin or phosphate concentration.
- Subjects
HEMODIALYSIS; CROSS-sectional method; ARTERIOVENOUS fistula; KIDNEY diseases; MEDICAL quality control
- Publication
QJM: An International Journal of Medicine, 2018, Vol 111, Issue 1, p15
- ISSN
1460-2725
- Publication type
Article
- DOI
10.1093/qjmed/hcx180