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- Title
Examining the Transition from Child to Adult Care in Chronic Kidney Disease: An Open Exploratory Approach.
- Authors
Nicholas, David B.; Kaufman, Miriam; Pinsk, Maury; Samuel, Susan; Hamiwka, Lorraine; Molzahn, Anita E.
- Abstract
For youth with chronic kidney disease (CKD) and their families, shifting from pediatric to adult systems of renal care can be challenging. This study explored the transitional process experienced by youth with CKD and their families, including perceived facilitators and barriers to effective transition. Qualitative interviews were conducted with youth with CKD (n=28) and their parents (n=28). Ambiguity regarding healthcare provider roles within the adult system was frequently reported. Themes reflected parental challenge relinquishing care responsibility, synergistic and divergent expectations between youth and parents, tensions in youth self-care readiness, desired healthcare provider roles in transition preparedness, and system considerations in transition. A "learning stage" was recommended in which youth experienced the adult system while supported by known pediatric team members.
- Subjects
CANADA; EVALUATION of medical care; AGE; CHRONIC kidney failure; CONTINUUM of care; HEALTH services accessibility; INTERVIEWING; MEDICAL care; PARENTING; PHYSICIANS; RESEARCH; RESEARCH funding; HEALTH self-care; ADOLESCENT health; OCCUPATIONAL roles; THEMATIC analysis; CONTINUING education units; DATA analysis software; PATIENTS' attitudes; FAMILY attitudes
- Publication
Nephrology Nursing Journal, 2018, Vol 45, Issue 6, p553
- ISSN
1526-744X
- Publication type
Article