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- Title
The strength of information on retinoblastoma for the family of the child.
- Authors
Doulavince Amador, Daniela; Marcílio, Ana Carolina; Souza Soares, Juliana dos Santos; Baptista Marques, Fernanda Ribeiro; Duarte, Adriana Maria; Aparecida Mandetta, Myriam
- Abstract
Objective: To understand the need for information from the family members of children with retinoblastoma. Methods: A qualitative study based on the Patient and Family Centered Care Model. Families of children undergoing treatment at a referral institution in pediatric oncology participated. Qualitative content analysis guided the data collection and analysis. Results: The strength of information on retinoblastoma for the family of these children reveals the value the family assigns to the information about the child's illness during a time of intense suffering; the paths they take to obtain the information; and, the elements considered to be essential to feel fulfilled in their own right. Conclusion: Provision of information that respects the family's time is essential; it must be honest, and contemplate future perspectives for the child, in a dialogical space. Thus, a practice based on the Patient and Family Centered Care Model is promoted.
- Subjects
BRAZIL; INFORMATION needs; HEALTH; CHILDREN'S health; COMMUNICATION; CONTENT analysis; FAMILIES; FAMILY medicine; INTERVIEWING; RESEARCH methodology; RESEARCH; RETINOBLASTOMA; INFORMATION resources; QUALITATIVE research; STANDARDS
- Publication
Acta Paulista de Enfermagem, 2018, Vol 31, Issue 1, p87
- ISSN
0103-2100
- Publication type
Article
- DOI
10.1590/1982-0194201800013