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- Title
Family Caregiving of Patients With Heart Failure and Vascular Dementia in Rural Appalachia: A Mixed-Methods Study.
- Authors
Piamjariyakul, Ubolrat; Wang, Kesheng; Smith, Marilyn; Young, Stephanie; Shafique, Saima; Navia, R. Osvaldo; Williams, Kristine
- Abstract
Introduction: Vascular dementia and heart failure (HF) are common co-existing conditions among adult populations. Each condition requires extensive home caregiving from family caregivers, especially those in rural Appalachia. This study aimed to assess caregivers' burden and their physical and mental health status, as well as explore their experiences and needs. Methods: This study used an exploratory mixed-methods design combining quantitative and qualitative research (N = 20 caregivers). We collected data using questionnaires, short-answered interviews, and focus group discussions. The multivariable generalized linear model (GLiM) was used to analyze quantitative data; content analysis was used for qualitative data. Results: The average age of family caregivers was 64.95 years. The generalized linear model showed that the caregiving burden was associated with caregivers' depression/anxiety (r = 0.68, P <.001) and their number of dementia caregiving years (r = 0.54, P <.05). Caregivers' poor physical health status was associated with better preparedness for HF and dementia home caregiving (r = 0.52, P <.05) and male caregivers (r = −0.46, P <.01). Caregivers' mental health status was associated with depression/anxiety (r = −0.80, P <.001). The qualitative data identified key caregiving themes: emotional impact and physical demands of caregiving, lack of help in rural areas, dealing with multiple disease progression, and relationship changes with their loved ones. Conclusion: Caregiving burden was associated with caregivers' home care responsibilities and the need for support. Nurse-led home caregiving preparedness interventions tailored for family caregivers of patients with HF and dementia in rural areas are recommended.
- Subjects
APPALACHIAN Region; HEART failure treatment; MENTAL depression risk factors; STATISTICAL models; SCALE analysis (Psychology); PEARSON correlation (Statistics); HEALTH services accessibility; FEAR; HEALTH status indicators; FOCUS groups; CRONBACH'S alpha; PATIENT safety; RESEARCH funding; CONTENT analysis; INTERVIEWING; QUESTIONNAIRES; VASCULAR dementia; DESCRIPTIVE statistics; ANXIETY; FAMILY relations; EMOTIONS; LONELINESS; BURDEN of care; THEMATIC analysis; FRUSTRATION; RURAL conditions; RESEARCH methodology; RESEARCH; MATHEMATICAL models; NEEDS assessment; PSYCHOLOGY of caregivers; THEORY; PSYCHOSOCIAL factors; CAREGIVER attitudes; DISEASE progression; SOCIAL isolation
- Publication
Western Journal of Nursing Research, 2024, Vol 46, Issue 5, p344
- ISSN
0193-9459
- Publication type
Article
- DOI
10.1177/01939459241242536