Found: 74
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A Prospective, Crossover Survey Study of Child- and Proxy-Reported Quality of Life According to Spinal Muscular Atrophy Type and Medical Interventions.
- Published in:
- Journal of Child Neurology, 2020, v. 35, n. 5, p. 322, doi. 10.1177/0883073819900463
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- Article
Understanding Adult Hospices Caring for Children in California, 2018-2021.
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- American Journal of Hospice & Palliative Medicine, 2024, v. 41, n. 8, p. 911, doi. 10.1177/10499091231204941
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- Article
Unraveling EPSDT and Pediatric Hospice Care: An Exploratory Policy Analysis.
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- American Journal of Hospice & Palliative Medicine, 2022, v. 39, n. 12, p. 1460, doi. 10.1177/10499091221079329
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- Article
Narrative medicine interventions for oncology clinicians: a systematic review.
- Published in:
- Supportive Care in Cancer, 2024, v. 32, n. 4, p. 1, doi. 10.1007/s00520-024-08434-1
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- Article
The predictive trifecta? Fatigue, pain, and anxiety severity forecast the suffering profile of children with cancer.
- Published in:
- 2022
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- Publication type:
- journal article
Kneading Acceptance: Experiential Massage Therapy Education Fosters Nursing Acceptance of Massage Therapy for Pediatric Patients.
- Published in:
- Journal of Alternative & Complementary Medicine, 2018, v. 24, n. 11, p. 1128, doi. 10.1089/acm.2018.0021
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- Publication type:
- Article
Interdisciplinary care of children with trisomy 13 and 18.
- Published in:
- American Journal of Medical Genetics. Part A, 2021, v. 185, n. 3, p. 966, doi. 10.1002/ajmg.a.62051
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- Publication type:
- Article
Bone fractures in children with trisomy 13 and 18.
- Published in:
- American Journal of Medical Genetics. Part A, 2020, v. 182, n. 9, p. 2187, doi. 10.1002/ajmg.a.61745
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- Article
Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review.
- Published in:
- Palliative Medicine, 2016, v. 30, n. 3, p. 212, doi. 10.1177/0269216315583446
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- Article
Exploring the impact of pediatric short bowel syndrome on parent well‐being using a disease‐specific pilot survey.
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- Nutrition in Clinical Practice, 2024, v. 39, n. 1, p. 154, doi. 10.1002/ncp.11008
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- Publication type:
- Article
Interventions to improve adherence to treatment for paediatric tuberculosis in low- and middle-income countries: a systematic review and meta-analysis.
- Published in:
- Bulletin of the World Health Organization, 2015, v. 93, n. 10, p. 700, doi. 10.2471/BLT.14.147231
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- Publication type:
- Article
Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions.
- Published in:
- Cardiology in the Young, 2021, v. 31, n. 3, p. 471, doi. 10.1017/S1047951120004023
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- Publication type:
- Article
Mixed method study of quality of life for children with trisomy 18 and 13 after cardiac surgery.
- Published in:
- 2020
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- Publication type:
- journal article
Discovering dad: paternal roles, responsibilities, and support needs as defined by fathers of children with complex cardiac conditions perioperatively.
- Published in:
- 2019
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- Publication type:
- journal article
Profile Comparison of Patient-Reported and Proxy-Reported Symptoms in Pediatric Patients With Cancer Receiving Chemotherapy.
- Published in:
- JAMA Network Open, 2022, v. 5, n. 3, p. e221855, doi. 10.1001/jamanetworkopen.2022.1855
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- Publication type:
- Article
Matched Marrow, Sibling Shadow: The Epidemiology, Experience, and Ethics of Sibling Donors of Stem Cells.
- Published in:
- Journal of Adolescent & Young Adult Oncology, 2015, v. 4, n. 3, p. 100, doi. 10.1089/jayao.2014.0051
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- Publication type:
- Article
What does the word healing mean to you? Perceptions of patients with life-limiting illness.
- Published in:
- Palliative & Supportive Care, 2024, v. 22, n. 3, p. 577, doi. 10.1017/S1478951522000839
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- Article
Aromatherapy improves nausea, pain, and mood for patients receiving pediatric palliative care symptom-based consults: A pilot design trial.
- Published in:
- 2020
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- Publication type:
- journal article
Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
- Published in:
- Palliative & Supportive Care, 2018, v. 16, n. 6, p. 706, doi. 10.1017/S1478951517001249
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- Publication type:
- Article
Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
- Published in:
- 2018
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- Publication type:
- journal article
Quality of Life Outcomes According to Differential Nusinersen Exposure in Pediatric Spinal Muscular Atrophy.
- Published in:
- Children, 2021, v. 8, n. 7, p. 1, doi. 10.3390/children8070604
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- Publication type:
- Article
Honoring the Good Parent Intentions of Courageous Parents: A Thematic Summary from a US-Based National Survey.
- Published in:
- Children, 2020, v. 7, n. 12, p. 1, doi. 10.3390/children7120265
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- Publication type:
- Article
Growing Symbiotic Local Partnerships to Nurture Quality Pediatric Hospice Care in Rural Regions: Companion Planting.
- Published in:
- JAMA Pediatrics, 2018, v. 172, n. 6, p. 517, doi. 10.1001/jamapediatrics.2017.3910
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- Publication type:
- Article
Translating Pediatric Hospital Interpreters' Feedback From Difficult Conversations into Improved Communication.
- Published in:
- Journal of Palliative Care, 2022, v. 37, n. 2, p. 159, doi. 10.1177/0825859720933112
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- Article
Sowing Across a State: Development and Delivery of a Grassroots Pediatric Palliative Care Nursing Curriculum.
- Published in:
- 2021
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- Publication type:
- journal article
Documentation of Advance Directives and Code Status in Electronic Medical Records to Honor Goals of Care.
- Published in:
- 2020
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- Publication type:
- journal article
Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature.
- Published in:
- 2019
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- Publication type:
- journal article
Using a Mindfulness-Based Intervention to Support the Resiliency of In-Patient Pediatric Respiratory Therapists.
- Published in:
- Respiratory Care, 2019, v. 64, n. 5, p. 550, doi. 10.4187/respcare.06483
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- Publication type:
- Article
How young adults with sickle cell disease define "being a good patient" in the adult healthcare system.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 2, p. 1, doi. 10.1002/pbc.30786
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- Publication type:
- Article
How we approach sharing child–caregiver PRO disagreement.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 2, p. 1, doi. 10.1002/pbc.30783
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- Publication type:
- Article
Agreement and disagreement between child–caregiver symptom and function reports in pediatric oncology.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 1, p. 1, doi. 10.1002/pbc.30710
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- Publication type:
- Article
How I approach the use of bibliotherapy in caring for children with oncologic and hematologic conditions.
- Published in:
- Pediatric Blood & Cancer, 2022, v. 69, n. 9, p. 1, doi. 10.1002/pbc.29780
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- Article
Homestead together: Pediatric palliative care telehealth support for rural children with cancer during home‐based end‐of‐life care.
- Published in:
- Pediatric Blood & Cancer, 2021, v. 68, n. 4, p. 1, doi. 10.1002/pbc.28921
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- Article
Taking burnout off the backburner.
- Published in:
- 2020
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- Publication type:
- journal article
Comment on: Spiritual support: A model of care not to forget.
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- 2019
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- Publication type:
- Letter
Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature.
- Published in:
- 2019
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- Publication type:
- journal article
Fifty joules.
- Published in:
- 2019
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- Publication type:
- journal article
How I approach expressing condolences and longitudinal remembering to a family after the death of a child.
- Published in:
- 2019
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- Publication type:
- journal article
Who is responsible for delivering palliative care to children with cancer?
- Published in:
- 2018
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- Publication type:
- journal article
Holding hope.
- Published in:
- 2017
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- Publication type:
- journal article
Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative.
- Published in:
- 2017
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- Publication type:
- journal article
Palliative Care as a Standard of Care in Pediatric Oncology.
- Published in:
- 2015
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- Publication type:
- journal article
A practical approach to reporting treatment abandonment in pediatric chronic conditions.
- Published in:
- Pediatric Blood & Cancer, 2015, v. 62, n. 4, p. 565, doi. 10.1002/pbc.25403
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- Publication type:
- Article
Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer.
- Published in:
- PLoS ONE, 2022, v. 17, n. 7, p. 1, doi. 10.1371/journal.pone.0270797
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- Publication type:
- Article
Informed Consent by Any Other Name: Consent Processes for Emergency Use Authorization.
- Published in:
- Journal of Clinical Pharmacology, 2021, v. 61, n. 6, p. 731, doi. 10.1002/jcph.1851
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- Publication type:
- Article
"Being a good patient" during times of illness as defined by adolescent patients with cancer.
- Published in:
- 2016
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- Publication type:
- journal article
Concept-elicitation phase for the development of the pediatric patient-reported outcome version of the Common Terminology Criteria for Adverse Events.
- Published in:
- 2016
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- Publication type:
- journal article
Adolescents' preferences for treatment decisional involvement during their cancer.
- Published in:
- 2015
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- Publication type:
- journal article
Integrating stages of change models to cast new vision on interventions to improve global retinoblastoma and childhood cancer outcomes.
- Published in:
- BMC Public Health, 2014, v. 14, p. 1, doi. 10.1186/1471-2458-14-944
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- Publication type:
- Article
Everyday Ethics or Deference to Expertise: Experiences of Pediatric Palliative Care Teams with Ethics Consultancy.
- Published in:
- Journal of Palliative Medicine, 2024, v. 27, n. 10, p. 1324, doi. 10.1089/jpm.2023.0568
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- Publication type:
- Article