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- Title
Top Ten Tips Palliative Care Clinicians Should Know About Prognostication in Children.
- Authors
Bergstraesser, Eva; Thienprayoon, Rachel; Brook, Lynda A.; Fraser, Lorna K.; Hynson, Jenny L.; Rosenberg, Abby R.; Snaman, Jennifer M.; Weaver, Meaghann S.; Widger, Kimberley; Zernikow, Boris; Jones, Christopher A.; Schlögl, Mathias
- Abstract
Pediatric palliative care (PPC) is different from palliative care (PC) for adults. However, conceptualizing PPC remains cumbersome due to the high heterogeneity of often rare diseases, the high diversity of disease trajectories, and the particular difficulty to predict the future of an individual, severely ill child. This article aims to provide an overview and critical reflection of different aspects of prognostication in children with PC needs. This includes different diseases from neurology to oncology, from the unborn baby to the young adult, new approaches in treatment, advance care planning, and, most important, communication with the affected child as well as parents.
- Subjects
CHRONIC disease treatment; NEUROLOGY; CHRONIC diseases; PEDIATRICS; MEDICAL personnel; TUMORS in children; ADVANCE directives (Medical care); PATIENTS' families; COMMUNICATION; PATIENT-professional relations; NEONATOLOGY; PALLIATIVE treatment; ONCOLOGY; REFLECTION (Philosophy)
- Publication
Journal of Palliative Medicine, 2021, Vol 24, Issue 11, p1725
- ISSN
1096-6218
- Publication type
Article
- DOI
10.1089/jpm.2021.0439