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- Title
Measuring psychosocial outcomes of men living with prostate cancer: feasibility of regular assessment of patient‐reported outcomes.
- Authors
Ettridge, Kerry; Wright, Kathleen; Smith, David; Chambers, Suzanne; Corsini, Nadia; Evans, Susan; Moretti, Kim; Roder, David; Scuffham, Paul; Miller, Caroline
- Abstract
Objective: To trial collecting patient‐reported outcome measures (PROMs) to assess psychosocial outcomes in men with prostate cancer (PC). Methods: A cross‐sectional postal survey was sent to three groups of 160 men with PC (6, 12 and 24 months post‐initial treatment; ntotal = 480), through the South Australian Prostate Cancer Clinical Outcomes Collaborative (SAPCCOC) registry (2017). Outcomes were as follows: response rate, completeness, general and disease‐specific quality of life, distress, insomnia, fear of recurrence, decisional difficulties and unmet need. Results: A response rate of 57–61% (n = 284) was achieved across groups. Data completeness was over 90% for 88% of survey items, with lower response (76–78%) for EPIC‐26 urinary and sexual functioning subscales, sexual aid use (78%) and physical activity (68%). In general, higher socio‐economic indicators were associated with higher completion of these measures (absolute difference 12–26%, p < 0.05). Lower unmet need on the sexuality domain (SCNS‐SF34) was associated with lower completion of the EPIC‐26 sexual functioning subscale [M (SD) = 12.4 (21.6); M (SD) = 26.3 (27.3), p <.001]. Worse leaking urine was associated with lower completion of urinary pad/diaper use question (EPIC‐26) [M (SD) = 65.9 (26.5), M (SD) = 77.3 (23.9), p <.01]. Conclusion: Assessment of psychosocial PROMs through a PC registry is feasible and offers insight beyond global quality of life assessment, to facilitate targeting and improvements in services and treatments.
- Subjects
REPORTING of diseases; KRUSKAL-Wallis Test; MEN'S health; CROSS-sectional method; TIME; HUMAN sexuality; ONE-way analysis of variance; URINATION disorders; HEALTH outcome assessment; FEAR; SURVEYS; PHYSICAL activity; SOCIOECONOMIC factors; DESCRIPTIVE statistics; QUALITY of life; DIAPERS; PUBLIC hospitals; CHI-squared test; EMPLOYMENT; RESEARCH funding; DECISION making; PROSTATE tumors; SEXUAL health; MEDICAL needs assessment; PSYCHOLOGICAL stress; EVALUATION
- Publication
European Journal of Cancer Care, 2021, Vol 30, Issue 4, p1
- ISSN
0961-5423
- Publication type
Article
- DOI
10.1111/ecc.13393