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Patients’ Views of Treatment-Focused Genetic Testing (TFGT): Some Lessons for the Mainstreaming of BRCA1 and BRCA2 Testing.
- Published in:
- Journal of Genetic Counseling, 2018, v. 27, n. 6, p. 1459, doi. 10.1007/s10897-018-0261-5
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- Publication type:
- Article
Making Sense of SNPs: Women’s Understanding and Experiences of Receiving a Personalized Profile of Their Breast Cancer Risks.
- Published in:
- Journal of Genetic Counseling, 2018, v. 27, n. 3, p. 702, doi. 10.1007/s10897-017-0162-z
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- Publication type:
- Article
Book Review Symposium: Dorothy Nelkin and M. Susan Lindee, The DNA Mystique: The Gene as a Cultural Icon.
- Published in:
- 2013
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- Publication type:
- Book Review
Understanding Life’s Lottery.
- Published in:
- Journal of Health Psychology, 1997, v. 2, n. 1, p. 31, doi. 10.1177/135910539700200104
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- Publication type:
- Article
Ambassadors of hope, research pioneers and agents of change-individuals' expectations and experiences of taking part in a randomised trial of an innovative health technology: longitudinal qualitative study.
- Published in:
- 2019
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- Publication type:
- journal article
Recall of participation in research projects in cancer genetics: some implications for research ethics.
- Published in:
- Clinical Ethics, 2008, v. 3, n. 4, p. 180, doi. 10.1258/ce.2008.008019
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- Publication type:
- Article
Ethics and research governance: the views of researchers, health-care professionals and other stakeholders.
- Published in:
- Clinical Ethics, 2008, v. 3, n. 2, p. 85, doi. 10.1258/ce.2008.008014
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- Publication type:
- Article
Seeking ethical approval: opening up the lines of communication.
- Published in:
- Clinical Ethics, 2006, v. 1, n. 2, p. 109, doi. 10.1258/147775006777254461
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- Publication type:
- Article
Treating childhood intermittent distance exotropia: a qualitative study of decision making.
- Published in:
- BMC Ophthalmology, 2015, v. 15, n. 1, p. 1, doi. 10.1186/s12886-015-0087-y
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- Publication type:
- Article
Treating childhood intermittent distance exotropia: a qualitative study of decision making.
- Published in:
- BMC Ophthalmology, 2015, v. 15, n. 1, p. 112, doi. 10.1186/s12886-015-0087-y
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- Publication type:
- Article
Treating childhood intermittent distance exotropia: a qualitative study of decision making.
- Published in:
- 2015
- By:
- Publication type:
- journal article
The impact of artificial intelligence on the person-centred, doctor-patient relationship: some problems and solutions.
- Published in:
- BMC Medical Informatics & Decision Making, 2023, v. 23, n. 1, p. 1, doi. 10.1186/s12911-023-02162-y
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- Publication type:
- Article
Motivations for Undertaking DNA Sequencing-Based Non-Invasive Prenatal Testing for Fetal Aneuploidy: A Qualitative Study with Early Adopter Patients in Hong Kong.
- Published in:
- PLoS ONE, 2013, v. 8, n. 11, p. 1, doi. 10.1371/journal.pone.0081794
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- Publication type:
- Article
If you build it, they will come: unintended future uses of organised health data collections.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Encounters with medical professionals: a crisis of trust or matter of respect?
- Published in:
- Medicine, Health Care & Philosophy, 2008, v. 11, n. 4, p. 427, doi. 10.1007/s11019-008-9156-9
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- Publication type:
- Article
‘You don’t want to lose your ovaries because you think ‘I might become a man’ ’. Women’s perceptions of prophylactic surgery as a cancer risk management option.
- Published in:
- Psycho-Oncology, 1998, v. 7, n. 3, p. 263, doi. 10.1002/(SICI)1099-1611(199805/06)7:3<263::AID-PON307>3.0.CO;2-Q
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- Publication type:
- Article
A family perspective of the value of a diagnosis for intellectual disability: experiences from a genetic research study.
- Published in:
- British Journal of Learning Disabilities, 2011, v. 39, n. 1, p. 46, doi. 10.1111/j.1468-3156.2010.00615.x
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- Publication type:
- Article
Connecting patients, researchers and clinical genetics services: the experiences of participants in the Australian Ovarian Cancer Study (AOCS).
- Published in:
- European Journal of Human Genetics, 2015, v. 23, n. 2, p. 152, doi. 10.1038/ejhg.2014.86
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- Publication type:
- Article
Public governance of medical artificial intelligence research in the UK: an integrated multi-scale model.
- Published in:
- Research Involvement & Engagement, 2022, v. 8, n. 1, p. 1, doi. 10.1186/s40900-022-00357-7
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- Publication type:
- Article
The Psychosocial Impact of Undergoing Prophylactic Total Gastrectomy (PTG) to Manage the Risk of Hereditary Diffuse Gastric Cancer (HDGC).
- Published in:
- Journal of Genetic Counseling, 2017, v. 26, n. 4, p. 752, doi. 10.1007/s10897-016-0045-8
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- Publication type:
- Article
Women's Understanding of Their Risk of Developing Breast/Ovarian Cancer Before and After Genetic Counseling.
- Published in:
- Journal of Genetic Counseling, 1998, v. 7, n. 4, p. 345, doi. 10.1023/A:1022072017436
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- Publication type:
- Article
Genetic Counseling, Reproductive Behavior and Future Reproductive Intentions of People with Neurofibromatosis Type 1 (NF1).
- Published in:
- Journal of Genetic Counseling, 1998, v. 7, n. 4, p. 331, doi. 10.1023/A:1022020000598
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- Publication type:
- Article
“Talking About Chance”: The Presentation of Risk Information During Genetic Counseling for Breast and Ovarian Cancer.
- Published in:
- Journal of Genetic Counseling, 1997, v. 6, n. 3, p. 269, doi. 10.1023/A:1025624221369
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- Publication type:
- Article
Family Communication and Genetic Counseling: The Case of Hereditary Breast and Ovarian Cancer.
- Published in:
- Journal of Genetic Counseling, 1997, v. 6, n. 1, p. 45, doi. 10.1023/A:1025611818643
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- Publication type:
- Article
Nuffield Council on Bioethics Report: Novel Techniques for the prevention of mitochondrial DNA disorders: an ethical review London: Nuffield Council of Bioethics 2012.
- Published in:
- Genomics, Society & Policy, 2012, v. 8, n. 2, p. 1, doi. 10.1186/1746-5354-8-2-29
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- Publication type:
- Article
Feasibility and design of a trial regarding the optimal mode of delivery for preterm birth: the CASSAVA multiple methods study.
- Published in:
- Health Technology Assessment, 2021, v. 25, n. 61, p. vii, doi. 10.3310/hta25610
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- Publication type:
- Article
Digital/computational phenotyping: What are the differences in the science and the ethics?
- Published in:
- Big Data & Society, 2021, p. 1, doi. 10.1177/20539517211062885
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- Publication type:
- Article
A Just Standard: The Ethical Management of Incidental Findings in Brain Imaging Research.
- Published in:
- Journal of Law, Medicine & Ethics, 2021, v. 49, n. 2, p. 269, doi. 10.1017/jme.2021.38
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- Publication type:
- Article
Gender and Genetics: Sociology of the Prenatal.
- Published in:
- Sociology of Health & Illness, 2016, v. 38, n. 6, p. 996, doi. 10.1111/1467-9566.12415
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- Publication type:
- Article
Inter-embodiment and the experience of genetic testing for familial hypercholesterolaemia.
- Published in:
- 2013
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- Publication type:
- Journal Article
Contextualising accounts of illness: notions of responsibility and blame in white and South Asian respondents’ accounts of diabetes causation.
- Published in:
- Sociology of Health & Illness, 2007, v. 29, n. 6, p. 891, doi. 10.1111/j.1467-9566.2007.01036.x
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- Publication type:
- Article
Guilt, blame and responsibility: men's understanding of their role in the transmission of BRCA1/2 mutations within their family.
- Published in:
- Sociology of Health & Illness, 2006, v. 28, n. 7, p. 969, doi. 10.1111/j.1467-9566.2006.00515.x
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- Publication type:
- Article
Risky Relations. Family, Kinship and the New Genetics by Featherstone, K., Atkinson, P., Bharadwaj, A. and Clarke, A.
- Published in:
- 2006
- By:
- Publication type:
- Book Review
Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure.
- Published in:
- Human Genomics, 2018, v. 12, n. 1, p. N.PAG, doi. 10.1186/s40246-018-0154-6
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- Publication type:
- Article
Governing AI‐Driven Health Research: Are IRBs Up to the Task?
- Published in:
- Ethics & Human Research, 2021, v. 43, n. 2, p. 35, doi. 10.1002/eahr.500085
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- Publication type:
- Article
The role of therapeutic optimism in recruitment to a clinical trial in a peripartum setting: balancing hope and uncertainty.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Recruiting and consenting into a peripartum trial in an emergency setting: a qualitative study of the experiences and views of women and healthcare professionals.
- Published in:
- 2016
- By:
- Publication type:
- journal article
Challenges of maintaining research protocol fidelity in a clinical care setting: a qualitative study of the experiences and views of patients and staff participating in a randomized controlled trial.
- Published in:
- 2011
- By:
- Publication type:
- journal article
Nitroglycerin for treatment of retained placenta: A randomised, placebo-controlled, multicentre, double-blind trial in the UK.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Moving into the mainstream: healthcare professionals' views of implementing treatment focussed genetic testing in breast cancer care.
- Published in:
- Familial Cancer, 2019, v. 18, n. 3, p. 293, doi. 10.1007/s10689-019-00122-y
- By:
- Publication type:
- Article
High-risk individuals' perceptions of reproductive genetic testing for CDH1 mutations.
- Published in:
- Familial Cancer, 2017, v. 16, n. 4, p. 531, doi. 10.1007/s10689-017-9976-y
- By:
- Publication type:
- Article
An investigation of the factors effecting high-risk individuals' decision-making about prophylactic total gastrectomy and surveillance for hereditary diffuse gastric cancer (HDGC).
- Published in:
- Familial Cancer, 2016, v. 15, n. 4, p. 665, doi. 10.1007/s10689-016-9910-8
- By:
- Publication type:
- Article
Looking different, feeling different: women's reactions to risk-reducing breast and ovarian surgery.
- Published in:
- Familial Cancer, 2012, v. 11, n. 2, p. 215, doi. 10.1007/s10689-011-9504-4
- By:
- Publication type:
- Article
The ethical challenges of artificial intelligence‐driven digital pathology.
- Published in:
- Journal of Pathology: Clinical Research, 2022, v. 8, n. 3, p. 209, doi. 10.1002/cjp2.263
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- Publication type:
- Article
Understanding the ethical and legal considerations of Digital Pathology.
- Published in:
- Journal of Pathology: Clinical Research, 2022, v. 8, n. 2, p. 101, doi. 10.1002/cjp2.251
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- Publication type:
- Article
Negotiating present and future selves: managing the risk of hereditary ovarian cancer by prophylactic surgery.
- Published in:
- Health: An Interdisciplinary Journal for the Social Study of Health, Illness & Medicine, 2002, v. 6, n. 4, p. 423, doi. 10.1177/136345930200600402
- By:
- Publication type:
- Article
Clinician-researchers and custodians of scarce resources: a qualitative study of health professionals' views on barriers to the involvement of teenagers and young adults in cancer trials.
- Published in:
- 2020
- By:
- Publication type:
- journal article
How Should Decision Aids Be Used During Counseling to Help Patients Who Are "Genetically at Risk"?
- Published in:
- AMA Journal of Ethics, 2019, v. 21, n. 10, p. 865, doi. 10.1001/amajethics.2019.865
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- Publication type:
- Article
Doing the right thing: genetic risk and responsibility.
- Published in:
- Sociology of Health & Illness, 1999, v. 21, n. 5, p. 597, doi. 10.1111/1467-9566.00175
- By:
- Publication type:
- Article
Staff experiences of closing out a clinical trial involving withdrawal of treatment: qualitative study.
- Published in:
- 2017
- By:
- Publication type:
- journal article