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- Title
Using Tribal Data Linkages to Improve the Quality of American Indian Cancer Data in Michigan.
- Authors
Weber, Tess L.; Copeland, Glenn; Pingatore, Noel; Schmid, Kendra K.; Jim, Melissa A.; Watanabe-Galloway, Shinobu
- Abstract
This study examines the extent to which data linkages between Indian Health Service, tribal data, and cancer registries affect cancer incidence rates among American Indians/Alaska Natives (AI/ANs) in Michigan. The incidence of tobacco- and alcohol-associated cancers for 1995–2012 was analyzed to compare rates of the Upper Peninsula (UP) and Lower Peninsula (LP) in Michigan and among AI/ANs and non-Hispanic Whites (NHWs). Complete linkage resulted in 1,352 additional AI/AN cases; 141 cases were linked via IHS records alone, while 373 were linked via tribal records alone; 838 were linked through both IHS and tribal records. Age-adjusted incidence rates for AI/ANs increased from 214.39 per 100,000 to 405.41 per 100,000, similar to that of NHWs after complete linkage (421.46 per 100,000). In the UP, AI/ANs had age-adjusted incidence rates 1.67 times higher than NHWs (596.69 per 100,000 vs. 356.32 per 100,000 respectively). This study indicates a substantial number of AI/AN cancer cases remain misclassified in Michigan.
- Subjects
MICHIGAN; AGE distribution; ALCOHOLS (Chemical class); CONFIDENCE intervals; REPORTING of diseases; HEALTH services accessibility; HEALTH status indicators; NATIVE Americans; MEDICAL record linkage; NOSOLOGY; QUALITY assurance; RACE; RESEARCH funding; SEX distribution; TUMORS; MEDICAL care of indigenous peoples; TOBACCO products; DATA quality; DATA analysis software; DESCRIPTIVE statistics
- Publication
Journal of Health Care for the Poor & Underserved, 2019, Vol 30, Issue 3, p1237
- ISSN
1049-2089
- Publication type
Article
- DOI
10.1353/hpu.2019.0084