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- Title
Long-term compliance with endoscopic surveillance for familial adenomatous polyposis Endoscopic surveillance advice for FAP.
- Authors
Douma, K. F. L.; Bleiker, E. M. A.; Aaronson, N. K.; Cats, A.; Gerritsma, M. A.; Gundy, C. M.; Vasen, H. F. A.
- Abstract
The study assessed compliance of patients with familial adenomatous polyposis (FAP) with endoscopic surveillance. In this nationwide, cross-sectional study, individuals from FAP families registered with the Netherlands Foundation for the Detection of Hereditary Tumours were invited to complete a questionnaire on endoscopic screening experiences. A total of 328 individuals were eligible for the study of whom 85 were at risk for FAP, 108 had an intact rectum after a colectomy with ileorectal anastomosis (IRA), and 135 had had a pouch following a proctocolectomy with ileoanal anastomosis (IPAA). Based on medical record data, 20% of the at-risk group and 26% of the IRA-group were found to be undercompliant with surveillance advice which was associated significantly with perceived self-efficacy, use of sedatives during surveillance, pain after surveillance and low perceived benefits of surveillance ( P < 0.05). One in five individuals at risk for FAP and one in four with a retained rectum are undercompliant with screening advice. We recommend that sedatives should be patient-tailored for FAP individuals undergoing surveillance and that adequate pain medication be provided after endoscopy.
- Subjects
COLON cancer; COLECTOMY; RESTORATIVE proctocolectomy; ENDOSCOPY; SEDATIVES
- Publication
Colorectal Disease, 2010, Vol 12, Issue 12, p1198
- ISSN
1462-8910
- Publication type
Article
- DOI
10.1111/j.1463-1318.2009.02008.x