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- Title
Satisfaction with videoconferencing support for levodopa-carbidopa intestinal gel: An observational study.
- Authors
Gurevich, Tanya; Evans, Andrew; Hassin-Baer, Sharon; Kägi, Georg; Koziorowski, Dariusz; Roszmann, Anna; Bergmann, Lars; Parra Riaza, Juan Carlos; Sánchez-Soliño, Olga; Sławek, Jarosław
- Abstract
Background: Levodopa-carbidopa intestinal gel (LCIG) is a continuously delivered Parkinson's disease therapy intended to stabilize plasma levodopa levels. Patients receiving LCIG require education and follow-up. Some LCIG support programs use video-assisted telenursing. Objective: To examine how videoconferencing impacts satisfaction with LCIG support programs. Methods: FACILITATE CARE (F easibility of video- A ssisted C are for I ntestinal L evodopa I nfusion with T elenursing – observ A tional T rial E valuating patient and C aregiver A cceptance in RE al life) was a 12-week, prospective, open-label, 2-arm, parallel-group, observational study assessing satisfaction with LCIG support in patients who self-assigned to video or audio-only arms. Patients aged 18–85 years had completed LCIG titration and owned a videoconferencing device (video arm only). A visual analog scale measured satisfaction (1–10, 10 being most satisfied). Results: Patients' mean (standard deviation) ages were 67.9 (7.4, n = 26) and 71.1 (6.2, n = 15) years in the video and audio arms, respectively. Patients, caregivers, and physicians in both groups reported satisfaction scores of 8–10 with LCIG support personnel, communication access, and assistance with becoming independent. At week 12, the Modified Caregiver Strain Index least square means change from baseline was lower in the video vs. audio arm (−2.3 [1.0] vs. 1.6 [1.2]). LCIG support personnel travel time was lower in the video vs. audio arm (125.7 [70.2] vs. 203.0 [70.0] minutes). Conclusions: LCIG support programs are associated with high patient, caregiver, and physician satisfaction; video and audioconferencing satisfaction are similarly high. Video-assisted telenursing may be a convenient communication avenue and may reduce caregiver burden. Registration: ClinicalTrials.gov; NCT04500106.
- Publication
Digital Health, 2024, p1
- ISSN
2055-2076
- Publication type
Article
- DOI
10.1177/20552076241271847