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- Title
Palliative Medicine and Decision Science: The Critical Need for a Shared Agenda To Foster Informed Patient Choice in Serious Illness.
- Authors
Bakitas, Marie; Kryworuchko, Jennifer; Matlock, Dan D.; Volandes, Angelo E.
- Abstract
Assisting patients and their families in complex decision making is a foundational skill in palliative care; however, palliative care clinicians and scientists have just begun to establish an evidence base for best practice in assisting patients and families in complex decision making. Decision scientists aim to understand and clarify the concepts and techniques of shared decision making (SDM), decision support, and informed patient choice in order to ensure that patient and family perspectives shape their health care experience. Patients with serious illness and their families are faced with myriad complex decisions over the course of illness and as death approaches. If patients lose capacity, then surrogate decision makers are cast into the decision-making role. The fields of palliative care and decision science have grown in parallel. There is much to be gained in advancing the practices of complex decision making in serious illness through increased collaboration. The purpose of this article is to use a case study to highlight the broad range of difficult decisions, issues, and opportunities imposed by a life-limiting illness in order to illustrate how collaboration and a joint research agenda between palliative care and decision science researchers, theorists, and clinicians might guide best practices for patients and their families.
- Subjects
COMMUNICATION methodology; DECISION making methodology; ATTITUDE (Psychology); BREAST tumors; CANCER patients; CHRONIC pain; DECISION making; DISEASES; INTERPROFESSIONAL relations; PALLIATIVE treatment; PATIENT satisfaction; PHYSICIAN-patient relations; RESEARCH funding; VIDEO recording
- Publication
Journal of Palliative Medicine, 2011, Vol 14, Issue 10, p1109
- ISSN
1096-6218
- Publication type
Article
- DOI
10.1089/jpm.2011.0032