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- Title
MSA-QoL: spezifisches Bewertungsinstrument zur Erfassung der Lebensqualität bei Multisystematrophie.
- Authors
Krismer, F.; Duerr, S.; Minnerop, M.; Klockgether, T.; Stamelou, M.; Eggert, K.M.; Oertel, W.H.; Schrag, A.; Poewe, W.; Wenning, G.K.
- Abstract
Background: Multiple system atrophy (MSA) is a rapidly progressive neurodegenerative disorder which causes early sustained disability and quality of life impairment. Recently, a self-reported questionnaire focusing on MSA-specific symptoms (Multiple System Atrophy Quality of Life questionnaire, MSA-QoL) was developed in the English language. This article reports the validation of the German translation of the MSA-QoL. Methods: Translation of the MSA-QoL was implemented in a 3-tiered approach including a forward translation, a back translation and an independent review. For the validation study 38 consecutive patients with MSA according to the consensus criteria were recruited by the participating centers in a German-Austrian cohort. Data were analyzed using standard psychometric procedures. Results: As determined by the independent review, the German translation of the MSA-QoL was classified as fully equivalent to the English version. The validation study confirmed good psychometric properties of the rating scale. Conclusion: The German translation of the MSA-QoL was shown to be a reliable patient-reported rating scale to determine health-related quality of life in MSA patients.
- Subjects
ATROPHY; NEURODEGENERATION; QUALITY of life; QUESTIONNAIRES; TRANSLATIONS; PSYCHOMETRICS
- Publication
Der Nervenarzt, 2013, Vol 84, Issue 6, p709
- ISSN
0028-2804
- Publication type
Article
- DOI
10.1007/s00115-013-3764-1