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- Title
Community Needs, Concerns, and Perceptions About Health Research: Findings From the Clinical and Translational Science Award Sentinel Network.
- Authors
Cottler, Linda B.; McCloskey, Donna Jo; Aguilar-Gaxiola, Sergio; Bennett, Nancy M.; Strelnick, Hal; Dwyer-White, Molly; Collyar, Deborah E.; Ajinkya, Shaun; Seifer, Sarena D.; O'Leary, Catina Callahan; Striley, Catherine W.; Evanoff, Bradley
- Abstract
Objectives. We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations. Methods. Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions. Results. Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%).Conclusions. Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing.
- Subjects
UNITED States; RESEARCH; CLINICAL medicine research; COMMUNITY health workers; COMMUNITY health services; CONFIDENCE intervals; DIABETES; ETHNIC groups; GEOGRAPHIC information systems; HEALTH risk assessment; HYPERTENSION; INFORMATION services; RESEARCH methodology; MEDICAL cooperation; OBESITY; PUBLIC opinion; PUBLIC relations; RACE; RESEARCH funding; SELF-evaluation; SURVEYS; TUMORS; NATIONAL Institutes of Health (U.S.); HUMAN research subjects; PATIENT selection
- Publication
American Journal of Public Health, 2013, Vol 103, Issue 4, p717
- ISSN
0090-0036
- Publication type
Article
- DOI
10.2105/AJPH.2012.300941