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- Title
Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors.
- Authors
Ramirez, Cynthia N.; Wojcik, Katherine Y.; Ritt-Olson, Anamara; Baezconde-Garbanati, Lourdes; Hamilton, Ann S.; Milam, Joel E.; Miller, Kimberly A.; Thomas, Stefanie M.; Freyer, David R.
- Abstract
<bold>Purpose: </bold>Childhood cancer survivors (CCS) report high unmet information needs. This study examined the prevalence of cancer-related information-seeking among CCS and investigated associations between information-seeking behavior and positive health outcomes such as follow-up care.<bold>Methods: </bold>Participants (n = 193) were young adult CCS diagnosed with cancer in Los Angeles County, 54% of Hispanic ethnicity, with a mean age of 19.87, in remission, and at least 2 years from completion of treatment. CCS were asked where they accessed health information related to their cancer with response options categorized into four information domains: hospital resources, social media, other survivors, and family members. Multivariable logistic regression was used to assess variables associated with each information domain, including sociodemographics, post-traumatic growth (i.e., reporting positive changes since cancer diagnosis), health care engagement, level of education, and health insurance status.<bold>Results: </bold>Hospital resources were the most commonly accessed information domain (65.3%), and CCS of Hispanic ethnicity (vs. non-Hispanic) were more likely to access this source. Seeking information from other cancer survivors was positively associated with follow-up care and post-traumatic growth. Hispanic CCS were marginally less likely to seek information from other survivors and family than non-Hispanics.<bold>Conclusions: </bold>While CCS obtain information from a variety of sources, hospital resources are an important site for access, particularly for individuals of Hispanic ethnicity. Information sharing between survivors may promote positive health care engagement; however, Hispanic CCS may be less likely to utilize this resource and may face barriers in information sharing with other cancer survivors.
- Subjects
HEALTH of cancer patients; CHILDHOOD cancer; INFORMATION prescriptions; CANCER diagnosis; CANCER treatment; HEALTH insurance; TUMORS &; psychology; COMMUNICATION; PSYCHOLOGY of Hispanic Americans; RESEARCH funding; TUMORS; LOGISTIC regression analysis; INFORMATION-seeking behavior; DISEASE prevalence
- Publication
Supportive Care in Cancer, 2018, Vol 26, Issue 4, p1305
- ISSN
0941-4355
- Publication type
journal article
- DOI
10.1007/s00520-017-3956-5