We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Understanding patient participation behaviour in studies of COPD support programmes such as pulmonary rehabilitation and self-management: a qualitative synthesis with application of theory.
- Authors
Sohanpal, Ratna; Steed, Liz; Mars, Thomas; Taylor, Stephanie J. C.
- Abstract
BACKGROUND: In chronic obstructive pulmonary disease (COPD), the problem of poor patient participation in studies of self-management (SM) and pulmonary rehabilitation (PR) programmes (together referred to as COPD support programmes) is established. Understanding this problem beyond the previously reported socio-demographics and clinical factors is critical. AIMS: The aim of this study was to explore factors that explain patient participation in studies of COPD support programmes. METHODS: Thematic 'framework' synthesis was conducted on literature published from 1984 to 1 February 2015. Emergent themes and subthemes were mapped onto the adapted 'attitude-social influence-external barriers' and the 'self-regulation' models to produce analytical themes. RESULTS: Ten out of 12 studies were included: PR (n = 9) and SM (n = 1). Three descriptive themes with 38 subthemes were mapped onto the models' constructs, and it generated four analytical themes: 'attitude', 'social influences' and 'illness' and 'intervention representations'. The following factors influenced (1) attendance--helping oneself through health improvements, perceived control of worsening condition, perceived benefits and positive past experience of the programme, as well as perceived positive influence of professionals; (2) non-attendance--perceived negative effects and negative past experience of the programme, perceived physical/practical concerns related to attendance, perceived severity of condition/symptoms and perceived negative influence of professionals/friends; (3) dropout--no health improvements perceived after attending a few sessions of the programme, perceived severity of the condition and perceived physical/practical concerns related to attendance. CONCLUSIONS: Psychosocial factors including perceived practical/physical concerns related to attendance influenced patients' participation in COPD support programmes. Addressing the negative beliefs/perceptions via behaviour change interventions may help improve participation in COPD support programmes and, ultimately, patient outcomes.
- Subjects
PATIENT participation; OBSTRUCTIVE lung diseases patients; OBSTRUCTIVE lung diseases; SELF-management (Psychology); MEDICAL rehabilitation
- Publication
NPJ Primary Care Respiratory Medicine, 2015, p1
- ISSN
2055-1010
- Publication type
Article
- DOI
10.1038/npjpcrm.2015.54