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- Title
Examination of the Relationship Between the Social Participation of Children with Autism and the Quality of Life and Caregiver Burden of the Parents: Cross-Sectional Study.
- Authors
ERSOY, Kübra; TORPİL, Berkan; KÖSE, Barkın; PEKÇETİN, Serkan
- Abstract
Objective: Children with autism (CwA) often face challenges in social participation, which can impact their ability to form relationships, engage in daily living activities, and develop important life skills. The impact of these challenges is not limited to the CwA alone but also extends to their parents or caregivers who assume the primary responsibility for their care. Our study aims to examine the relationship between the social participation of CwA and the quality of life (QoL) of parents and caregiver burden. Material and Methods: 32 caregivers with children aged 5-12 years with autism spectrum disorder were included in the study. Children's social participation was evaluated with the Child and Adolescent Participation Scale (CASP). Parents' QoL was assessed with the WHOQOL-BREF and caregiver burden with the Zarit Caregiver Burden Scale (ZCBS). Results: A moderate negative significant correlation was found between CASP and ZCBS (r=-0.593**, p<0.01), a low moderate positive significant correlation between CASP and WHOQOL-BREF (r=0.374*, p<0.05). Conclusion: The findings of our study highlight the importance of promoting social participation in CwA, not only for the benefit of the child but also for the well-being of the parents and the family as a whole. In this context, occupational therapy interventions to be applied to increase the social participation of CwA are very important in reducing the burden of care and increasing the QoL of parents.
- Subjects
AUTISM in children; SOCIAL participation; QUALITY of life; SOCIAL responsibility; OCCUPATIONAL therapy
- Publication
Turkiye Klinikleri Journal of Health Sciences / Türkiye Klinikleri Sağlık Bilimleri Dergisi, 2024, Vol 9, Issue 1, p84
- ISSN
2536-4391
- Publication type
Article
- DOI
10.5336/healthsci.2023-98034