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- Title
Relational Decision‐Making in the Context of Life‐Limiting Fetal Anomalies: Two Cases of Anencephaly Diagnosis.
- Authors
Zielinski, Ruth E.; Roosevelt, Lee; Nelson, Kathryn; Vargas, Brittaney; Thomas, Jonalea W.
- Abstract
Life‐limiting fetal diagnoses such as anencephaly require families to make decisions in which no options offered will lead to the desired outcome of a healthy newborn. Although informed choice and shared decision‐making are important aspects of ethics regarding care choices, they have limitations. In this article, 2 cases of anencephaly diagnosis are presented, and a relational decision‐making model of care is proposed as an alternative for aiding pregnant people and their families in making challenging choices in the context of perinatal care.
- Subjects
FAMILIES &; psychology; ANENCEPHALY; AUTONOMY (Psychology); CATASTROPHIC illness; DECISION making; FETAL abnormalities; MATERNAL health services; PATIENT-family relations; PREGNANT women; ETHICAL decision making; SOCIAL support
- Publication
Journal of Midwifery & Women's Health, 2020, Vol 65, Issue 6, p813
- ISSN
1526-9523
- Publication type
Article
- DOI
10.1111/jmwh.13161