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- Title
Healthcare for children with congenital Zika syndrome: analysis of access to social rights.
- Authors
Artimos de Oliveira, Fernanda; Malaquias da Silva, Angela; Santos da Hora, Senir; Artimos de Oliveira, Solange; da Silva Junior, Aluísio Gomes; Araújo Cardoso, Claudete Aparecida
- Abstract
The objective of this study was to describe if the victims of the Zika have access to essential public policies to guarantee social rights. Methods: We used a cross-sectional study of a historical cohort of children with congenital Zika syndrome (CZS) in a reference hospital. CZS diagnosis was based on the Ministry of Health protocol. The variables analyzed were sociodemographic and social rights of children. Results: Of the 161 children seen from April 2016 to July 2018, 42 were diagnosed with CZS. Of these, 37 children participated in the study and 75.7% of them had severe neurological disorders. Anticonvulsants were used by 73% of the children, with 81% paid by families. The families were also responsible for purchasing nutritional formulas and diapers in, respectively, 79% and 100% of cases, and 89% of the children had access to rehabilitation therapy, although 70% of them faced several barriers to do it. Of the 24 working mothers, 83% did not return to the labor market after the birth of their children. Conclusions: The results showed that the families were at an intersection between the integral activity of caring for a child with severe disabilities and inefficient and omissive public authorities, a disincentive and discouraging context that made them give up in seeking their rights.
- Subjects
ZIKA virus infections; SOCIAL &; economic rights; CARE of children with disabilities; INFANT formulas; WORKING mothers; GOVERNMENT policy
- Publication
Revista Ciência & Saúde Coletiva, 2022, Vol 27, Issue 9, p3679
- ISSN
1413-8123
- Publication type
Article
- DOI
10.1590/1413-81232022279.02972022